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探索公立儿童发展服务机构中家长对以家庭为中心的照护模式的看法。

Exploring parental perceptions of a family-centred model of care in a public child development service.

作者信息

Argall Nicole L, Johnson Emma, Cox Elissa, Hislop Carly, Lefmann Sophie A

机构信息

Child Development Service, 157842Townsville Hospital and Health Service, Australia.

Physiotherapist1067.

出版信息

J Child Health Care. 2022 Mar;26(1):5-17. doi: 10.1177/1367493521993972. Epub 2021 Feb 11.

Abstract

Family-centred care (FCC) is recognised as a fundamental practice principle in the delivery of contemporary paediatric allied health care; however, limited evidence exists on how to translate FCC theory into practice for Child Development Services (CDS). This study describes and evaluates parent perceptions of a family-centred model of care at a publicly funded CDS where a care pathway consists of parent orientation-to-service session, integrated transdisciplinary allied health assessment, feedback and goal setting appointments. 15 participants completed a semi-structured in-depth interview and rating scales of service satisfaction. Interview data were audio recorded and transcribed verbatim. Thematic analysis and data triangulation were completed by three investigators to enhance validity and descriptive statistics were identified. The model of care was positively perceived by families, with participants identifying value in communication; fostering of respect and partnership and therapist skills. Service themes that influenced parents' perception of the model included benefits of a holistic approach to care and staffing continuity. Uncertainty of wait list time frames and transition/discharge points were identified as a source of stress by families. This research investigates what components of FCC are meaningful to consumers and considers practical ideas of delivering care within a family-centred framework.

摘要

以家庭为中心的护理(FCC)被公认为是当代儿科联合健康护理服务中的一项基本实践原则;然而,关于如何将FCC理论转化为儿童发展服务(CDS)实践的证据有限。本研究描述并评估了在一个由公共资金资助的CDS中,家长对以家庭为中心的护理模式的看法,该护理模式的路径包括家长服务介绍会、综合跨学科联合健康评估、反馈及目标设定预约。15名参与者完成了一次半结构化深度访谈及服务满意度评分量表。访谈数据进行了录音并逐字转录。由三名研究人员完成了主题分析和数据三角验证以提高效度,并确定了描述性统计数据。家庭对该护理模式给予了积极评价,参与者们认可沟通、培养尊重与伙伴关系以及治疗师技能方面的价值。影响家长对该模式看法的服务主题包括整体护理方法的益处和人员配备的连续性。家庭将等待名单时间框架和过渡/出院时间点的不确定性视为压力来源。本研究调查了FCC的哪些组成部分对消费者有意义,并考虑了在以家庭为中心的框架内提供护理的实际想法。

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