Division of Neurology, Department of Medicine, Faculty of Medicine, University of Malaya, Kuala Lumpur, Malaysia.
Division of Neurology, Department of Medicine, Faculty of Medicine, University of Malaya, Kuala Lumpur, Malaysia.
Epilepsy Behav. 2021 Apr;117:107798. doi: 10.1016/j.yebeh.2021.107798. Epub 2021 Feb 11.
In epilepsy stigma, certain perceptions are culturally dependent and greatly influence a person's attitudes. Hence, we aimed to explore the perceptions associated with attitudes toward epilepsy in various urban subpopulations.
This is a mixed-method study employing the Public Attitude Toward Epilepsy (PATE) scale as the quantitative measure, followed by a semi-structured interview. The qualitative data were then counted and analyzed concurrently with the quantitative data.
A total of 410 respondents (104 people with epilepsy [PWE]; 104 family members [FM]; 100 medical students [MS]; 102 public [Pb]) aged 37 years (IQR 23-55) were recruited. They were mostly female (57.3%), Chinese (52.0%), and highly educated (63.7%). The attitudes toward epilepsy among medical students are the best, followed by the PWE and their family members, and the worst among the public. The qualitative results revealed 4 main themes, which were "general social values", "epilepsy severity and control", "PWE's abilities", and "harms and burdens to the respondents and others". A two-dimensional perception model was constructed based on these themes, which consisted of general-personal and universal-specific dimensions. Generally, the PWE/FM subgroup focused more on PWE's abilities, whereas the MS/Pb subgroup more on general social values, and harms and burden. In the education aspect, most attitudes were related to the epilepsy severity and PWE's abilities, whereas in employment, the main consideration was the PWE's abilities. Burden to life and concern about inheritance were major considerations in the marital relationship. Those with positive attitudes tend to highlight the importance of general social values, while negative attitudes associated more with epilepsy severity. In general domain, general social values were the main considering factor but in personal domain, most participants will consider epilepsy severity and control, harms and burden to themselves.
The perceptions underlying attitudes toward epilepsy were complex and varied between subpopulations, attitude levels, domains, and aspects of life. (304 words).
在癫痫污名中，某些观念具有文化依赖性，极大地影响着人们的态度。因此，我们旨在探讨不同城市亚人群中与对癫痫的态度相关的观念。
这是一项混合方法研究，采用公众对癫痫的态度量表（PATE）作为定量测量工具，随后进行半结构化访谈。然后对定性数据进行计数，并与定量数据同时进行分析。
共招募了 410 名受访者（104 名癫痫患者[PWE]；104 名家庭成员[FM]；100 名医学生[MS]；102 名公众[Pb]），年龄为 37 岁（IQR 23-55）。他们大多是女性（57.3%）、中国人（52.0%）和高学历（63.7%）。医学生对癫痫的态度最好，其次是 PWE 和他们的家庭成员，而公众的态度最差。定性结果揭示了 4 个主要主题，分别是“一般社会价值观”、“癫痫的严重程度和控制”、“PWE 的能力”和“对受访者和他人的伤害和负担”。基于这些主题构建了一个二维感知模型，该模型由一般个人和普遍特定两个维度组成。一般来说，PWE/FM 亚组更关注 PWE 的能力，而 MS/Pb 亚组更关注一般社会价值观和伤害和负担。在教育方面，大多数态度与癫痫的严重程度和 PWE 的能力有关，而在就业方面，主要考虑的是 PWE 的能力。生活负担和对遗传的担忧是婚姻关系中的主要考虑因素。那些持积极态度的人往往更强调一般社会价值观的重要性，而消极态度则更多地与癫痫的严重程度有关。在一般领域，一般社会价值观是主要考虑因素，但在个人领域，大多数参与者将考虑癫痫的严重程度和控制、对自己的伤害和负担。
对癫痫的态度背后的观念是复杂的，并且在亚人群、态度水平、领域和生活方面存在差异。（304 字）
