自闭症大学生专科朋辈辅导家长的经验
Experiences of Parents of Specialist Peer Mentored Autistic University Students.
机构信息
Cooperative Research Centre for Living with Autism (Autism CRC), Queensland, Australia.
School of Allied Health, Curtin University, Perth, Western Australia, Australia.
出版信息
Dev Neurorehabil. 2021 Aug;24(6):368-378. doi: 10.1080/17518423.2021.1886190. Epub 2021 Feb 16.
ABSTRCT
Parents continue to support to autistic university students, and consequently, experience considerable stress.: To explore the experiences of parents of specialist peer mentored university students and to examine these using the ICF as a theoretical framework.: Thirteen semi-structured interviews were completed and analyzed using thematic analysis. Directive content analysis linked the data to the ICF core set for autism spectrum disorders (ASD).: Five interrelated themes emerged: , and . Specialist peer mentoring was linked to Activity and Participation (44%) and Environmental factors (32%) of the ICF core set for ASD.: These results add to the specialist peer mentoring evidence-base, and indicate perceived benefits for autistic university students and their parents. An unintended consequence was that parents broadened their participation in activities.
摘要
父母继续支持自闭症大学生，因此他们经历了相当大的压力。本研究旨在探索专家朋辈导师大学生的父母的经历，并使用国际功能、残疾和健康分类（ICF）作为理论框架来研究这些经历。研究采用半结构式访谈的方法，共完成了 13 次访谈，并使用主题分析进行了分析。指令性内容分析将数据与自闭症谱系障碍（ASD）的 ICF 核心集联系起来。研究结果共出现了五个相互关联的主题：压力和支持、父母的角色和经历、沟通和关系、朋辈导师的作用、以及对未来的展望。专家朋辈导师与 ICF 核心集的活动和参与（44%）以及环境因素（32%）有关。这些结果增加了专家朋辈导师的证据基础，并表明自闭症大学生及其父母认为这种方式有好处。一个意想不到的后果是，父母扩大了他们的活动参与。
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