Department of Public Health, Faculty of Health Sciences, University of Stavanger, PB 8600 Forus, 4016 Stavanger, Norway.
Department of Public Health, Faculty of Health Sciences, University of Stavanger, PB 8600 Forus, 4016 Stavanger, Norway; Department of Cardiology, Stavanger University Hospital, PB 8100, 4068 Stavanger, Norway.
Heart Lung. 2021 May-Jun;50(3):369-374. doi: 10.1016/j.hrtlng.2021.02.003. Epub 2021 Feb 20.
Patients with heart failure (HF) must manage both a demanding treatment regimen and self-care, which may lead to a burden of treatment. The purpose of this study was to assess the levels of burdens from treatment and self-care and its associations with psychological distress and health-related quality of life.
In this cross-sectional study we collected self-report data from 125 patients diagnosed with HF, New York Heart Association classification II and III, who received care in a nurse-led HF outpatient clinic. Clinical variables were collected from the medical records. Data analyses comprised descriptive statistics and partial correlations.
The participants mean age was 67 (±9.2), most were male (74,4%) and the majority had reduced ejection fraction (EF 35.4 ± 10.8). The highest mean burden scores emerged for insufficient medical information (34.65, range 0-86), difficulty with health care service (34.57, range 0-81), and physical and mental fatigue (34.12, range 0-90). Significant positive associations were observed between physical and mental fatigue from self-care, role and social activity limitation, and psychological distress, and health-related QoL.
Burden of treatment is an important aspect of HF treatment as it contributes to valuable knowledge on patient workload. This study emphasizes the need to simplify and tailor the treatment regimens to alleviate the burden.
心力衰竭（HF）患者必须管理既要求苛刻的治疗方案和自我护理，这可能导致治疗负担。本研究的目的是评估治疗和自我护理的负担水平及其与心理困扰和健康相关生活质量的关系。
在这项横断面研究中，我们从在护士主导的 HF 门诊诊所接受治疗的 125 名纽约心脏协会分类 II 和 III 的 HF 患者中收集了自我报告数据。从病历中收集了临床变量。数据分析包括描述性统计和偏相关。
参与者的平均年龄为 67（±9.2），大多数为男性（74.4%），大多数射血分数降低（EF 35.4±10.8）。医疗信息不足（34.65，范围 0-86）、医疗保健服务困难（34.57，范围 0-81）和身体和精神疲劳（34.12，范围 0-90）的负担得分最高。自我护理、角色和社会活动受限以及心理困扰与身体和精神疲劳之间存在显著正相关，与健康相关的 QoL 也存在显著正相关。
治疗负担是 HF 治疗的一个重要方面，因为它有助于了解患者的工作量。这项研究强调需要简化和定制治疗方案以减轻负担。
