School of Communication Sciences and Disorders, Western University, London, Ontario, Canada.
Health and Rehabilitation Sciences, Western University, London, Ontario, Canada.
Am J Speech Lang Pathol. 2021 Jun 18;30(3S):1314-1328. doi: 10.1044/2020_AJSLP-20-00124. Epub 2021 Feb 25.
Purpose The purpose of this study was to explore the psychosocial impact of botulinum toxin (BoNT) injections for oromandibular dystonia (OMD) and to gain a better understanding of how participants judge the success of this treatment. Method Eight individuals with OMD and dysarthria participated in one face-to-face, semistructured interview. Interviews were audio-recorded and transcribed verbatim. Qualitative, phenomenological methods of coding, immersion, and emergence were used in the analysis of interview data. Results Two major themes and six subthemes emerged from the analysis of interview data. The first theme, , explored the participants' perspective of receiving BoNT injections and its psychosocial impact. The second theme, , explored the psychosocial impact of BoNT on speech production and participation. Conclusions Our results suggest that BoNT has a variable impact on domains related to quality of life, satisfaction with treatment, speech production, and communicative participation. This study adds novel information related to the psychosocial consequences of BoNT treatment in the management of OMD and builds on a literature that studies the consequences and experiences of living with OMD.
目的 本研究旨在探讨肉毒毒素(BoNT)注射治疗口颌肌张力障碍(OMD)的心理社会影响,并深入了解参与者如何判断这种治疗的效果。 方法 8 名患有 OMD 和构音障碍的患者参与了一次面对面的半结构化访谈。访谈进行了录音,并逐字转录。采用定性、现象学的编码、沉浸和浮现方法对访谈数据进行分析。 结果 从访谈数据的分析中得出了两个主要主题和六个子主题。第一个主题是“接受 BoNT 注射及其心理社会影响的观点”,探讨了参与者对接受 BoNT 注射及其心理社会影响的看法。第二个主题是“BoNT 对言语产生和参与的心理社会影响”,探讨了 BoNT 对言语产生和参与的心理社会影响。 结论 我们的研究结果表明,BoNT 对与生活质量、治疗满意度、言语产生和交流参与相关的领域有不同的影响。本研究为 OMD 管理中 BoNT 治疗的心理社会后果提供了新的信息,并建立了一个研究 OMD 患者生活后果和经历的文献基础。