Northumbria Healthcare NHS Foundation Trust, North Tyneside General Hospital, North Shields, Tyne and Wear, UK.
Department of Nursing, Midwifery and Health, Northumbria University, Newcastle-upon-Tyne, UK.
J Geriatr Psychiatry Neurol. 2022 May;35(3):363-373. doi: 10.1177/0891988721996819. Epub 2021 Mar 2.
Parkinsonism, including Parkinson's disease (PD) are progressive neurological conditions. As these condition progress, individuals will need more support with their care needs to maintain independent community-living. Care needs are mainly met by unpaid, informal caregivers, usually close family members or friends. Caregiver strain is thought to lead to the need for care home placement when the caregiver can no longer cope.
To understand predictors of caregiver strain and its influence on care home placement for people with moderate to advanced Parkinsonism.
This is a convergent mixed methods study. Quantitative data, following an adapted stress-appraisal model, were collected on caregiver profile, tasks performed and causes of caregiver strain. Semi-structured, in-depth interviews were conducted with caregivers of people with PD (PwP) who went into a care home during the study period, to develop a deeper understanding of the caregiver role and the factors influencing caregiver strain.
Quantitative data were collected from 115 patient caregiver dyads. Interviews were conducted with 10 caregivers. A model to predict caregiver strain was developed and predictors of caregiver strain were identified, such as functional disability and poor caregiver sleep.
Our findings further demonstrate the complexity of carer strain. Particular dimensions are identified that need to be addressed within clinical practice to reduce carer strain and support people with Parkinsonism to remain within their own home for as long as possible.
帕金森病（PD）等帕金森症是进行性神经疾病。随着这些疾病的发展，患者将需要更多的护理支持，以维持独立的社区生活。护理需求主要由无偿的、非正式的照顾者来满足，通常是亲密的家庭成员或朋友。当照顾者无法再应对时，照顾者的压力被认为是导致需要入住养老院的原因。
了解中度至重度帕金森症患者照顾者压力的预测因素及其对入住养老院的影响。
这是一项收敛混合方法研究。根据改编的应激评估模型，收集了照顾者特征、所执行任务和导致照顾者压力的原因等定量数据。对在研究期间入住养老院的 PD 患者（PwP）的照顾者进行了半结构化深入访谈，以更深入地了解照顾者的角色和影响照顾者压力的因素。
从 115 对患者-照顾者二人组中收集了定量数据。对 10 名照顾者进行了访谈。制定了一个预测照顾者压力的模型，并确定了照顾者压力的预测因素，例如功能障碍和照顾者睡眠质量差。
我们的研究结果进一步证明了照顾者压力的复杂性。确定了需要在临床实践中解决的特定维度，以减轻照顾者的压力，并支持帕金森症患者尽可能长时间地留在自己的家中。
