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英国国家义眼问卷研究:义眼佩戴者体验的预测因素 第 2 部分——视觉功能和生活质量。

The UK National Artificial Eye Questionnaire Study: predictors of artificial eye wearers' experience Part 2 - visual function and quality of life.

机构信息

Corneoplastic Unit, Queen Victoria Hospital NHS Foundation Trust, East Grinstead, West Sussex, UK.

Maxillofacial Prosthetics, Queen Victoria Hospital NHS Foundation Trust, East Grinstead, West Sussex, UK.

出版信息

Eye (Lond). 2022 Jan;36(1):140-147. doi: 10.1038/s41433-021-01459-4. Epub 2021 Mar 1.

Abstract

OBJECTIVES

To report associations with visual function and quality of life (QOL) in artificial eye wearers.

METHODS

Multicentre, observational, cross-sectional, nationwide study, within the National Health Service England. Items were adopted from the National Eye Institute Visual Function Questionnaire, and incorporated in the National Artificial Eye Questionnaire (NAEQ). The NAEQ was completed by 951 respondents. Multiple regressions assessed associations between the QOL scores and the experiences of artificial eye wearers, their routine management, changes over time, baseline and demographic parameters.

RESULTS

Parameters predictive of a better QOL composite score included longer artificial eye wear (β = 0.18, p < 0.001), better appearance (β = 0.17, p < 0.001), better comfort (β = 0.14, p = 0.001), tumour-related anophthalmia (β = 0.13, p = 0.003), male gender (β = 0.13, p < 0.001), shorter period of adjustment to monocular vision (β = 0.12, p < 0.001) and use of soap for cleaning (β = 0.09, p = 0.046). The composite score continued to improve beyond 10 years of prosthesis wear (≤2 years mean 72.80 ± 1.65 versus >10 years mean 79.45 ± 0.70; p = 0.001). Both better prosthesis appearance (β = 0.14, p = 0.022) and improved motility (β = 0.13, p = 0.042) predicted a better dependency score. Use of lubricating ointment predicted a worse dependency score (β = 0.23, p = 0.003). Neither the frequency of removal, nor the cleaning frequency of the artificial eye correlated with QOL scales.

CONCLUSIONS

Multiple factors in the artificial eye experience were found to predict visual function and QOL aspects. This study underscores the need to generate a dedicated QOL questionnaire for use in anophthalmic patients.

摘要

目的

报告义眼佩戴者的视觉功能和生活质量(QOL)与哪些因素相关。

方法

这是一项在英格兰国家医疗服务体系内开展的全国性、多中心、观察性、横断面研究。研究采用了美国国立卫生研究院视觉功能问卷中的项目,并将其纳入国家义眼问卷(NAEQ)。共有 951 名受访者完成了 NAEQ。多元回归分析评估了义眼佩戴者的体验、日常管理、随时间的变化、基线和人口统计学参数与 QOL 评分之间的关联。

结果

可预测 QOL 综合评分较高的参数包括佩戴义眼时间较长(β=0.18,p<0.001)、外观更好(β=0.17,p<0.001)、舒适度更高(β=0.14,p=0.001)、肿瘤相关性眼球缺失(β=0.13,p=0.003)、男性(β=0.13,p<0.001)、适应单眼视力的时间较短(β=0.12,p<0.001)以及使用肥皂清洁(β=0.09,p=0.046)。在佩戴义眼 10 年以上时,综合评分仍持续改善(佩戴≤2 年的平均评分为 72.80±1.65,而佩戴>10 年的平均评分为 79.45±0.70;p=0.001)。义眼外观更好(β=0.14,p=0.022)和运动能力提高(β=0.13,p=0.042)均可预测依赖性评分更高。使用润眼药膏则预示着依赖性评分更差(β=0.23,p=0.003)。义眼的移除频率和清洁频率均与 QOL 评分无关。

结论

义眼佩戴体验中的多个因素被发现可预测视觉功能和 QOL 方面。本研究强调了为眼球缺失患者开发专用 QOL 问卷的必要性。

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本文引用的文献

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Concerns of anophthalmic patients wearing artificial eyes.无眼患者佩戴义眼的担忧。
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