Teasdale Emma, Sivyer Katy, Muller Ingrid, Ghio Daniela, Roberts Amanda, Lawton Sandra, Santer Miriam
Primary Care, Population Sciences and Medical Education, Faculty of Medicine, University of Southampton, Southampton SO17 1BJ, UK.
Centre for Clinical and Community Applications of Health Psychology, University of Southampton, Southampton SO17 1BJ, UK.
Children (Basel). 2021 Feb 20;8(2):158. doi: 10.3390/children8020158.
Eczema affects one in five children and can have a substantial impact on quality of life. This qualitative study aimed to explore children's views and experiences of eczema and what may affect treatment adherence from their perspective. We conducted semi-structured, face-to-face interviews with children with eczema aged 6-12 years from March to July 2018. Interviews were transcribed verbatim and analysed using inductive thematic analysis. We found that children do not typically view eczema as a long-term condition, and topical treatments (predominately emollients) were seen to provide effective symptom relief. Uncertainty around co-managing at home was expressed as children typically felt that parental reminders and assistance with applying different types of topical treatments were still needed. For some children, eczema can be difficult to manage at school due to a lack of convenient access and appropriate spaces to apply creams and psychosocial consequences such as attracting unwanted attention from peers and feeling self-conscious. Treatment adherence could be supported by reinforcing that eczema is a long-term episodic condition, providing clear information about regular emollient use, practical advice such as setting reminders to support co-management at home, and working with schools to facilitate topical treatment use when necessary.
湿疹影响着五分之一的儿童,对生活质量有重大影响。这项定性研究旨在从儿童自身的角度探索他们对湿疹的看法和经历,以及可能影响治疗依从性的因素。2018年3月至7月,我们对6至12岁的湿疹患儿进行了半结构化的面对面访谈。访谈内容逐字记录,并采用归纳主题分析法进行分析。我们发现,儿童通常不认为湿疹是一种长期疾病,外用治疗(主要是润肤剂)被认为能有效缓解症状。儿童表示在家中共同管理存在不确定性,因为他们通常觉得仍需要父母提醒并协助涂抹不同类型的外用药物。对一些儿童来说,由于在学校缺乏方便的涂抹空间,且存在一些心理社会后果,如引起同伴不必要的关注和感到难为情,湿疹在学校可能难以控制。可以通过强化湿疹是一种长期发作性疾病、提供关于定期使用润肤剂的明确信息、提供如设置提醒以支持在家中共同管理等实用建议,以及与学校合作在必要时方便外用药物的使用等方式来提高治疗依从性。