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Br J Gen Pract. 2022 May 26;72(719):e390-e397. doi: 10.3399/BJGP.2021.0630. Print 2022 Jun.
2
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4
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Br J Gen Pract. 2022 May 26;72(719):252. doi: 10.3399/bjgp22X719489. Print 2022 Jun.

本文引用的文献

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Children's Views and Experiences of Treatment Adherence and Parent/Child Co-Management in Eczema: A Qualitative Study.儿童对湿疹治疗依从性及亲子共同管理的看法和体验:一项定性研究
Children (Basel). 2021 Feb 20;8(2):158. doi: 10.3390/children8020158.
2
Taking charge of eczema self-management: a qualitative interview study with young people with eczema.负责湿疹自我管理:一项针对湿疹青少年的定性访谈研究。
BMJ Open. 2021 Jan 6;11(1):e044005. doi: 10.1136/bmjopen-2020-044005.
3
The content and conduct of GP consultations for dermatology problems: a cross-sectional study.全科医生皮肤科就诊内容和行为:一项横断面研究。
Br J Gen Pract. 2020 Oct 1;70(699):e723-e730. doi: 10.3399/bjgp20X712577. Print 2020 Oct.
4
Views and experiences of managing eczema: systematic review and thematic synthesis of qualitative studies.管理湿疹的观点和经验:定性研究的系统评价和主题综合。
Br J Dermatol. 2021 Apr;184(4):627-637. doi: 10.1111/bjd.19299. Epub 2020 Aug 14.
5
The wounded self-lonely in a crowd: A qualitative study of the voices of children living with atopic dermatitis in Hong Kong.在人群中孤独受伤的自我:一项关于香港特应性皮炎患儿心声的定性研究。
Health Soc Care Community. 2020 May;28(3):862-873. doi: 10.1111/hsc.12917. Epub 2019 Dec 12.
6
Best emollients for eczema (BEE) - comparing four types of emollients in children with eczema: protocol for randomised trial and nested qualitative study.湿疹最佳润肤剂(BEE)——比较四种润肤剂对湿疹儿童的效果:随机试验和嵌套定性研究方案
BMJ Open. 2019 Nov 6;9(11):e033387. doi: 10.1136/bmjopen-2019-033387.
7
'It's like the bad guy in a movie who just doesn't die': a qualitative exploration of young people's adaptation to eczema and implications for self-care.“就像电影里的反派角色一样,怎么都死不了”:一项关于年轻人适应湿疹的定性探索及其对自我护理的影响。
Br J Dermatol. 2020 Jan;182(1):112-118. doi: 10.1111/bjd.18046. Epub 2019 Jul 28.
8
Saturation in qualitative research: exploring its conceptualization and operationalization.定性研究中的饱和度:探索其概念化与操作化
Qual Quant. 2018;52(4):1893-1907. doi: 10.1007/s11135-017-0574-8. Epub 2017 Sep 14.
9
Adolescents' Perspectives on Atopic Dermatitis Treatment-Experiences, Preferences, and Beliefs.青少年对特应性皮炎治疗的看法——经验、偏好和信念。
JAMA Dermatol. 2018 Jul 1;154(7):824-827. doi: 10.1001/jamadermatol.2018.1096.
10
Developing a written action plan for children with eczema: a qualitative study.为湿疹儿童制定书面行动计划:一项定性研究。
Br J Gen Pract. 2018 Feb;68(667):e81-e89. doi: 10.3399/bjgp17X693617. Epub 2017 Dec 4.

家长和儿童对儿童特应性皮炎保湿剂的评价:一项定性研究。

How parents and children evaluate emollients for childhood eczema: a qualitative study.

机构信息

Bristol Population Health Sciences Institute, University of Bristol, Bristol.

Primary Care Research Centre, University of Southampton, Southampton.

出版信息

Br J Gen Pract. 2022 May 26;72(719):e390-e397. doi: 10.3399/BJGP.2021.0630. Print 2022 Jun.

DOI:10.3399/BJGP.2021.0630
PMID:35606161
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9172216/
Abstract

BACKGROUND

Eczema affects one in five children in the UK. Regular application of emollients is routinely recommended for children with eczema. There are four main emollient types, but no clear evidence of which is best. The current 'trial and error' approach to find suitable emollients can be frustrating for parents, children, and clinicians.

AIM

To identify how parents and children experience and evaluate emollients.

DESIGN AND SETTING

Qualitative interview study, nested within a primary care trial of emollients (Best Emollients for Eczema [BEE] trial).

METHOD

Semi-structured interviews with children with eczema and their parents were conducted. Participants were purposively sampled on emollient type (lotion, cream, gel, or ointment), age, and eczema severity.

RESULTS

Forty-four parents were interviewed, with children participating in 24 of those interviews. There was no clear preference for any one emollient type. The strongest theme was the variation of experience in each of the four types. Participants focused on thickness and absorbency, both positively and negatively, to frame their evaluations. Effectiveness and acceptability were both considered when evaluating an emollient but effectiveness was the primary driver for continued use. For some, participating in the trial had changed their knowledge and behaviour of emollients, resulting in use that was more regular and for a longer duration.

CONCLUSION

There is no one emollient that is suitable for everyone, and parents/children prioritise different aspects of emollients. Future research could evaluate decision aids and/or tester pots of different types, which could enable clinicians and parents/children to work collaboratively to identify the best emollient for them.

摘要

背景

在英国,每五个儿童中就有一个患有湿疹。对于患有湿疹的儿童,常规推荐定期使用保湿剂。目前有四种主要的保湿剂类型,但没有明确的证据表明哪种最好。目前,为了找到合适的保湿剂,家长、孩子和临床医生只能采用“反复尝试”的方法,这可能会令人感到沮丧。

目的

确定家长和儿童对保湿剂的体验和评价方式。

设计和设置

这是一项在初级保健保湿剂试验(最佳湿疹保湿剂试验[BEE])中嵌套的定性访谈研究。

方法

对患有湿疹的儿童及其家长进行半结构化访谈。根据保湿剂类型(乳液、乳膏、凝胶或软膏)、年龄和湿疹严重程度,对参与者进行有针对性的抽样。

结果

共对 44 名家长进行了访谈,其中 24 名家长的孩子参与了访谈。家长对任何一种保湿剂类型都没有明显的偏好。最强的主题是四种类型的体验都存在差异。参与者关注保湿剂的厚度和吸收性,从正反两方面来评价保湿剂。在评估保湿剂时,既考虑有效性,也考虑可接受性,但有效性是继续使用的主要驱动因素。对一些人来说,参与试验改变了他们对保湿剂的知识和行为,导致更频繁、更持久地使用保湿剂。

结论

没有一种保湿剂适合所有人,家长/孩子会优先考虑保湿剂的不同方面。未来的研究可以评估不同类型的决策辅助工具和/或试用装,这可以使临床医生和家长/孩子能够共同协作,为他们找到最合适的保湿剂。