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Care for children with haemophilia during COVID-19: Data of the PedNet study group.

作者信息

Álvarez-Román María Teresa, Kurnik Karin

机构信息

Department of Hematology, La Paz University Hospital-IdiPaz, Madrid, Spain.

Department of Hematology, Dr V. Haunersches Kinderspital, University of Munich, Munich, Germany.

出版信息

Haemophilia. 2021 Jul;27(4):e537-e539. doi: 10.1111/hae.14286. Epub 2021 Mar 8.

DOI:10.1111/hae.14286
PMID:33683753
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8250903/
Abstract
摘要

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Haemophilia. 2021 Jul;27(4):e473-e475. doi: 10.1111/hae.14160. Epub 2020 Sep 30.
2
Telehealth for delivery of haemophilia comprehensive care during the COVID-19 pandemic.COVID-19 大流行期间通过远程医疗提供血友病综合护理。
Haemophilia. 2020 Nov;26(6):984-990. doi: 10.1111/hae.14156. Epub 2020 Sep 30.
3
Impact of COVID-19 pandemic on mental health of patients with inherited bleeding disorders in Germany.COVID-19 大流行对德国遗传性出血性疾病患者心理健康的影响。
Haemophilia. 2020 Nov;26(6):e272-e281. doi: 10.1111/hae.14130. Epub 2020 Sep 15.
4
Management of haemophilia patients in the COVID-19 pandemic: Experience in Wuhan and Tianjin, two differently affected cities in China.COVID-19 大流行期间血友病患者的管理：中国受影响程度不同的两个城市武汉和天津的经验。
Haemophilia. 2020 Nov;26(6):1031-1037. doi: 10.1111/hae.14108. Epub 2020 Sep 6.
5
COVID-19 and telemedicine in haemophilia in a patient with severe haemophilia A and orthopaedic surgery.1例重度甲型血友病患者合并骨科手术中COVID-19与远程医疗
Haemophilia. 2021 Jan;27(1):e137-e139. doi: 10.1111/hae.14087. Epub 2020 Nov 3.
6
Clinical trials and Haemophilia during the COVID-19 pandemic: Madrid's experience.COVID-19大流行期间的临床试验与血友病：马德里的经验
Haemophilia. 2020 Sep;26(5):e247-e249. doi: 10.1111/hae.14055. Epub 2020 Jun 12.
7
The COVID-19 pandemic: New global challenges for the haemophilia community.新冠疫情：血友病群体面临的新全球挑战。
Haemophilia. 2020 May;26(3):371-372. doi: 10.1111/hae.14001. Epub 2020 Apr 20.
8
Telemedicine and telerehabilitation: current and forthcoming applications in haemophilia.远程医疗和远程康复：血友病的当前和未来应用。
Blood Transfus. 2019 Sep;17(5):385-390. doi: 10.2450/2019.0218-18. Epub 2019 Feb 4.
9
Prospective observational cohort studies for studying rare diseases: the European PedNet Haemophilia Registry.用于研究罕见病的前瞻性观察队列研究：欧洲儿科网络血友病登记处
Haemophilia. 2014 Jul;20(4):e280-6. doi: 10.1111/hae.12448. Epub 2014 May 2.