Department of Preventive Medicine, Keck School of Medicine, University of Southern California, Los Angeles, California, USA.
Department of Dermatology, Keck School of Medicine, University of Southern California, Los Angeles, California, USA.
J Health Commun. 2021 Feb 1;26(2):83-91. doi: 10.1080/10810730.2021.1895919. Epub 2021 Mar 10.
For childhood cancer survivors (CCS), parents play an important role in communicating with providers and conveying patient's needs. This exploratory study examined the prevalence of cancer-related information-seeking among parents of CCS and investigated the association between parents' race/ethnicity and language preference with health communication and satisfaction with child's medical providers. One hundred and sixty CCS and their parents from two hospitals in Los Angeles County were recruited from the SEER registry. Multivariable logistic regression analyses assessed associations between parents' race/ethnicity and language preference and their health communication with their child and with their child's medical care providers. Among the parents, 29% were Spanish-speaking Hispanics, 27% English-speaking Hispanics, and 43% English-speaking non-Hispanics. Regardless of language preference, Hispanic parents were more likely than non-Hispanic parents to receive health information about their CCS's cancer from hospital sources versus the internet. There was no difference by ethnicity/language in parent satisfaction with their CCS's medical provider. Spanish-speaking Hispanic parents were more likely to report talking to their CCS about the need for cancer-related follow-up care compared to non-Hispanic English-speaking parents. These findings point to the potential importance of parents' ethnicity and language for sources of health information and frequency of communication with their CCS about their cancer care.
对于儿童癌症幸存者（CCS）来说，父母在与医疗服务提供者沟通和传达患者需求方面起着重要作用。这项探索性研究调查了 CCS 父母癌症相关信息搜索的普遍程度，并研究了父母的种族/民族和语言偏好与健康沟通以及对子女医疗服务提供者的满意度之间的关系。从洛杉矶县的两家医院的 SEER 登记处招募了 160 名 CCS 及其父母。多变量逻辑回归分析评估了父母的种族/民族和语言偏好与他们与子女及其子女医疗保健提供者的健康沟通之间的关联。在这些父母中，29%是讲西班牙语的西班牙裔，27%是讲英语的西班牙裔，43%是讲英语的非西班牙裔。无论语言偏好如何，西班牙裔父母比非西班牙裔父母更有可能从医院而不是互联网上获得有关其 CCS 癌症的健康信息。在种族/语言方面，父母对其 CCS 的医疗服务提供者的满意度没有差异。与非西班牙裔英语父母相比，讲西班牙语的西班牙裔父母更有可能与他们的 CCS 谈论癌症相关的后续护理需求。这些发现表明，父母的种族和语言对于健康信息的来源以及与他们的 CCS 就其癌症护理进行沟通的频率可能很重要。
