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通过职业参与应对幻肢痛:对支持小组参与者的定性研究

Addressing Phantom Pain Through Occupational Participation: A Qualitative Study of Support Group Participants.

作者信息

Camacho Victor M, Carlson Anna N, Bondoc Salvador

机构信息

Kean University, Hillside, NJ, USA.

Quinnipiac University, Hamden, CT, USA.

出版信息

OTJR (Thorofare N J). 2021 Apr;41(2):116-123. doi: 10.1177/1539449220973950.

Abstract

The purpose of this qualitative phenomenological study was to explore the adaptation process of support group participants who are survivors of lower limb amputation (LLA) experiencing phantom limb pain (PLP). The study followed a qualitative, descriptive phenomenological design. Ten adult participants with LLA met inclusion criteria and through semi-structured interviews shared their lived experience. A qualitative descriptive methodology was used to analyze the data collected from interview transcriptions. Analysis involved coding and theme development. Three themes emerged: PLP interrupted but does not prevent participation, adapting to PLP allowed for continued participation in meaningful occupations, and education to promote self-management of PLP. Themes identified highlight the importance of social support and early education on PLP to facilitate the adaption process and promote occupational participation. The finding underscores the value of empowering survivors to self-manage pain through their own personal and unique ways.

摘要

这项质性现象学研究的目的是探索下肢截肢(LLA)幸存者且经历幻肢痛(PLP)的支持小组参与者的适应过程。该研究采用了质性、描述性现象学设计。十名成年LLA参与者符合纳入标准,并通过半结构化访谈分享了他们的生活经历。采用质性描述方法对访谈转录收集的数据进行分析。分析包括编码和主题开发。出现了三个主题:PLP虽有干扰但不阻碍参与;适应PLP使能继续参与有意义的活动;开展教育以促进PLP的自我管理。所确定的主题凸显了社会支持和对PLP的早期教育对于促进适应过程和职业参与的重要性。研究结果强调了赋予幸存者权力,使其能够通过自身独特方式进行疼痛自我管理的价值。

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