生活在心理社会压力下：自闭症谱系障碍儿童的母亲的看法。
Living under psychosocial pressure: Perception of mothers of children with autism spectrum disorders.
机构信息
Department of Psychiatric Nursing, Nursing Care Research Center, Iran University of Medical Sciences, Tehran, Iran.
Department of Nursing and Health Research, Centre for Intellectual and Developmental Disabilities, The Ulster University, Northern Ireland, UK.
出版信息
J Child Adolesc Psychiatr Nurs. 2021 Aug;34(3):212-218. doi: 10.1111/jcap.12310. Epub 2021 Mar 18.
PROBLEM
Mothers of children with autism spectrum disorders (ASD) experience higher levels of stress compared to mothers of typically developing children. This study identified mothers' perceptions of the stress caused by lifelong caregiving to a child with ASD.
METHODS
The current study was conducted in Iran using qualitative methods. In-depth, semi-structured interviews were conducted with twenty-seven mothers. Content analysis was used to analyze and categorize the data.
FINDINGS
The main categories included (1) psychological concerns and suffering and (2) sociocultural challenges. The first category consisted of two subcategories, including disruption in mother-child relationships and fears and worries. Also, the second category included subcategories of cultural constraints and lack of social support.
CONCLUSIONS
In this study, the mothers of autistic children experienced psychosocial pain. Identifying the stressors for these mothers could lead to appropriate planning to provide psychological, social, and cultural support for them in Iranian society.
问题
与发育正常的儿童的母亲相比，自闭症谱系障碍（ASD）儿童的母亲经历着更高水平的压力。本研究旨在确定母亲对终生照顾 ASD 儿童所带来压力的看法。
方法
本研究在伊朗采用定性方法进行。对 27 名母亲进行了深入的半结构化访谈。采用内容分析法对数据进行分析和分类。
结果
主要类别包括（1）心理问题和痛苦，以及（2）社会文化挑战。第一类包括母子关系中断和恐惧和担忧两个亚类。此外，第二类包括文化限制和缺乏社会支持的亚类。
结论
在这项研究中，自闭症儿童的母亲经历了心理社会痛苦。确定这些母亲的压力源，可以为伊朗社会为她们提供心理、社会和文化支持提供适当的规划。
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