Yeganeh Ladan, Johnston-Ataata Kate, Vincent Amanda J, Flore Jacinthe, Kokanović Renata, Teede Helena, Boyle Jacqueline A
Monash Centre for Health Research and Implementation, School of Public Health and Preventive Medicine, Monash University, Clayton, Victoria, Australia.
Social and Global Studies Centre, School of Global, Urban and Social Studies, RMIT University, Melbourne, Victoria, Australia.
Semin Reprod Med. 2020 Sep;38(4-05):315-322. doi: 10.1055/s-0041-1726273. Epub 2021 Mar 18.
Early menopause/premature ovarian insufficiency is associated with negative health impacts, unmet information needs, delayed diagnosis, and variation in management. Co-designed digital resources for women with early menopause/premature ovarian insufficiency and health practitioners were developed to address information needs and support management. A five-phase mixed methods multidisciplinary research, co-design and translation process comprised: (1) survey/interviews with women and health practitioners to explore early menopause/premature ovarian insufficiency needs, experiences, and management; (2) appraisal of clinical guidelines to develop management algorithms; (3) digital resource development (https://healthtalkaustralia.org/early-menopause-experiences-and-perspectives-of-women-and-health-professionals/; (4) evaluation; and (5) dissemination/implementation. The digital resources included audio/video clips of women with early menopause/premature ovarian insufficiency and health practitioners providing early menopause/premature ovarian insufficiency care, a question prompt list, health practitioner algorithms, information links, and a list of services for women, achieving high satisfaction ratings from women and health practitioners. Engaging our stakeholder partners, multimodal dissemination has included community and conference presentations, social media, lay and professional publications, and webinars. This project provides a model for successful interdisciplinary co-design research translation to improve women's health.
早期绝经/卵巢早衰与负面健康影响、未满足的信息需求、诊断延迟以及管理差异相关。针对患有早期绝经/卵巢早衰的女性和健康从业者共同设计了数字资源，以满足信息需求并支持管理。一个五阶段的混合方法多学科研究、共同设计和转化过程包括：（1）对女性和健康从业者进行调查/访谈，以探索早期绝经/卵巢早衰的需求、经历和管理；（2）评估临床指南以制定管理算法；（3）数字资源开发（https://healthtalkaustralia.org/early-menopause-experiences-and-perspectives-of-women-and-health-professionals/）；（4）评估；以及（5）传播/实施。数字资源包括患有早期绝经/卵巢早衰的女性和提供早期绝经/卵巢早衰护理的健康从业者的音频/视频片段、问题提示列表、健康从业者算法、信息链接以及女性服务列表，获得了女性和健康从业者的高度满意度评价。通过与我们的利益相关者合作伙伴合作，多模式传播包括社区和会议演讲、社交媒体、大众和专业出版物以及网络研讨会。该项目为成功进行跨学科共同设计研究转化以改善女性健康提供了一个范例。
