COPD 患者的信息需求——整体方法，特别关注性别和诊断后时间。
The information needs of people with COPD-The holistic approach with special reference to gender and time since diagnosis.
机构信息
Department of Health Sciences, Faculty of Social Sciences, Tampere University, Tampere, Finland.
Faculty of Medicine and Health Technology, Tampere University, Tampere, Finland.
出版信息
Nurs Open. 2021 Sep;8(5):2498-2508. doi: 10.1002/nop2.773. Epub 2021 Mar 23.
AIMS
The aim of this study was to determine what kinds of unmet information needs people with COPD have and whether there are differences in information needs between genders or based on the time since COPD diagnosis.
DESIGN
A descriptive cross-sectional study.
METHODS
Data on people with COPD (N = 169) were collected from a two-part questionnaire distributed via website. On the first part, information needs concerning the medical aspects of self-management were measured by the Lung Information Needs Questionnaire (LINQ). On the second part, which was developed specifically for this study, a more holistic view of self-management counselling was sought. Statistical methods were used to analyse the data.
RESULTS
The respondents had wide-ranging information needs in many areas of COPD self-management. The most often reported areas of unmet information needs included exacerbations, diet, fatigue, stress and anxiety, palliative care and sexual life. The information needs varied by gender and time since COPD diagnosis.
目的
本研究旨在确定 COPD 患者存在哪些未满足的信息需求，以及这些需求是否存在性别差异或与 COPD 诊断时间的差异。
设计
描述性的横断面研究。
方法
通过网站分发两部分问卷，收集 COPD 患者（N=169）的数据。第一部分通过 Lung Information Needs Questionnaire（LINQ）测量与自我管理的医疗方面相关的信息需求。第二部分是专门为此研究开发的，旨在寻求更全面的自我管理咨询观点。使用统计方法分析数据。
结果
受访者在 COPD 自我管理的许多领域都有广泛的信息需求。报告最多的未满足信息需求领域包括恶化、饮食、疲劳、压力和焦虑、姑息治疗和性生活。信息需求因性别和 COPD 诊断时间而异。
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