• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利：CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法，用中文像聊天一样搜索，搜遍4000万医学文献。AI智能推荐，让科研检索更轻松。

立即免费搜索

文件翻译

保留排版，准确专业，支持PDF/Word/PPT等文件格式，支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述，25分钟生成高质量综述，智能提取关键信息，辅助科研写作。

立即免费体验

How to Help Your Patients Enroll in the New-Onset Refractory Status Epilepticus (NORSE) and Febrile Infection-Related Epilepsy Syndrome (FIRES) Family Registry, and Other Rare Epilepsy Registries.

作者信息

Kazazian Karnig, Kellogg Marissa, Wong Nora, Eschbach Krista, Moeller Raquel Farias, Gaspard Nicolas, Hirsch Lawrence J, Hocker Sara, Gofton Teneille

机构信息

Schulich School of Medicine and Dentistry, Western University, London, Ontario, Canada.

Oregon Health and Science University, Portland, OR, USA.

出版信息

Epilepsy Curr. 2021 Mar 26;21(5):15357597211002869. doi: 10.1177/15357597211002869.

DOI:10.1177/15357597211002869
PMID:33769129
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8655258/
Abstract
摘要

相似文献

1
How to Help Your Patients Enroll in the New-Onset Refractory Status Epilepticus (NORSE) and Febrile Infection-Related Epilepsy Syndrome (FIRES) Family Registry, and Other Rare Epilepsy Registries.如何帮助您的患者加入新发难治性癫痫持续状态（NORSE）和发热感染相关癫痫综合征（FIRES）家庭登记处以及其他罕见癫痫登记处。
Epilepsy Curr. 2021 Mar 26;21(5):15357597211002869. doi: 10.1177/15357597211002869.
2
How to Help Your Patients Enroll in the New-Onset Refractory Status Epilepticus (NORSE) and Febrile Infection-Related Epilepsy Syndrome (FIRES) Family Registry, and Other Rare Epilepsy Registries.如何帮助您的患者加入新发难治性癫痫持续状态（NORSE）和发热感染相关癫痫综合征（FIRES）家庭登记册以及其他罕见癫痫登记册。
Epilepsy Curr. 2021 Mar 5:1535759721998329. doi: 10.1177/1535759721998329.
3
Febrile Infection-Related Epilepsy Syndrome (FIRES): An Overview of Treatment and Recent Patents.发热感染相关癫痫综合征（FIRES）：治疗概述及近期专利
Recent Pat Inflamm Allergy Drug Discov. 2018;12(2):128-135. doi: 10.2174/1872213X12666180508122450.
4
New-onset refractory status epilepticus (NORSE) and febrile infection-related epilepsy syndrome (FIRES): State of the art and perspectives.新起难治性癫痫持续状态（NORSE）和热性感染相关癫痫综合征（FIRES）：现状与展望。
Epilepsia. 2018 Apr;59(4):745-752. doi: 10.1111/epi.14022. Epub 2018 Feb 24.
5
Communication trends over time in new-onset refractory status epilepticus (NORSE): Interim analysis from the NORSE/FIRES Family Registry.新起耐药性癫痫持续状态（NORSE）的时间沟通趋势：NORSE/FIRES 家族登记处的中期分析。
Epilepsy Behav. 2024 Nov;160:110023. doi: 10.1016/j.yebeh.2024.110023. Epub 2024 Sep 5.
6
Proposed consensus definitions for new-onset refractory status epilepticus (NORSE), febrile infection-related epilepsy syndrome (FIRES), and related conditions.新起难治性癫痫持续状态（NORSE）、感染相关性癫痫综合征（FIRES）及相关情况的共识定义建议。
Epilepsia. 2018 Apr;59(4):739-744. doi: 10.1111/epi.14016. Epub 2018 Feb 5.
7
Clinical presentation of new onset refractory status epilepticus in children (the pSERG cohort).儿童新发难治性癫痫持续状态的临床特征（pSERG 队列研究）。
Epilepsia. 2021 Jul;62(7):1629-1642. doi: 10.1111/epi.16950. Epub 2021 Jun 6.
8
New onset refractory status epilepticus (NORSE).新起耐药性癫痫持续状态（NORSE）。
Seizure. 2019 May;68:72-78. doi: 10.1016/j.seizure.2018.09.018. Epub 2018 Sep 29.
9
A practical approach to in-hospital management of new-onset refractory status epilepticus/febrile infection related epilepsy syndrome.医院内新发难治性癫痫持续状态/发热感染相关癫痫综合征的实用管理方法。
Front Neurol. 2023 May 12;14:1150496. doi: 10.3389/fneur.2023.1150496. eCollection 2023.
10
Severe, Refractory Seizures: New-Onset Refractory Status Epilepticus and Febrile Infection-Related Epilepsy Syndrome.严重、难治性癫痫发作：新发难治性癫痫持续状态和热性感染相关性癫痫综合征。
Med Clin North Am. 2024 Jan;108(1):201-213. doi: 10.1016/j.mcna.2023.05.020. Epub 2023 Jul 26.

引用本文的文献

1
New onset refractory status epilepticus: Long-term outcomes beyond seizures.新发难治性癫痫持续状态：癫痫发作之外的长期预后
Epilepsia. 2025 Apr;66(4):988-1005. doi: 10.1111/epi.18267. Epub 2025 Jan 18.
2
Age-associated differences in FIRES: Characterizing prodromal presentation and long-term outcomes via the web-based NORSE/FIRES Family Registry.FIRES 中与年龄相关的差异：通过基于网络的北欧癫痫性脑病/FIRES 家庭登记处描述前驱症状和长期预后。
Epilepsia. 2025 Mar;66(3):e35-e40. doi: 10.1111/epi.18260. Epub 2025 Jan 13.
3
Fever-Associated Seizures or Epilepsy: An Overview of Old and Recent Literature Acquisitions.发热相关性惊厥或癫痫：新旧文献综述
Front Pediatr. 2022 Apr 21;10:858945. doi: 10.3389/fped.2022.858945. eCollection 2022.

本文引用的文献

1
Raring for change: Confluence of scientific discovery and advocate alignment warrants vital new investments in The Epilepsies.渴望变革：科学发现与倡导者结盟，为癫痫的重要新投资提供了依据。
Epilepsy Behav. 2020 Oct;111:107276. doi: 10.1016/j.yebeh.2020.107276. Epub 2020 Aug 1.
2
New onset refractory status epilepticus research: What is on the horizon?新起难治性癫痫持续状态研究：前景如何？
Neurology. 2019 Apr 23;92(17):802-810. doi: 10.1212/WNL.0000000000007322. Epub 2019 Mar 20.
3
Proposed consensus definitions for new-onset refractory status epilepticus (NORSE), febrile infection-related epilepsy syndrome (FIRES), and related conditions.新起难治性癫痫持续状态（NORSE）、感染相关性癫痫综合征（FIRES）及相关情况的共识定义建议。
Epilepsia. 2018 Apr;59(4):739-744. doi: 10.1111/epi.14016. Epub 2018 Feb 5.