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神经伦理学的内外:神经设备行业代表和普通公众对神经技术伦理问题和原则的比较调查。

Neuroethics Inside and Out: A Comparative Survey of Neural Device Industry Representatives and the General Public on Ethical Issues and Principles in Neurotechnology.

机构信息

University of Washington.

Oregon Health & Science University.

出版信息

AJOB Neurosci. 2022 Jan-Mar;13(1):44-54. doi: 10.1080/21507740.2021.1896596. Epub 2021 Mar 31.

DOI:10.1080/21507740.2021.1896596
PMID:33787456
Abstract

Neurotechnologies are rapidly being developed with the aim of alleviating suffering caused by disease and assisting individuals with various disabilities. As the capabilities and applications of neural devices advance, potential ethical challenges related to agency, identity, privacy, equality, normality and justice have been noted. We sought to explore attitudes toward these ethical challenges in two important, but understudied groups of stakeholders-members of the neural device industry and members of the general public. Survey responses from 66 industry professionals and 1088 members of the general public who do not work with neural devices were collected. After controlling for demographic differences between the groups (industry vs. general public; age, gender, racial/ethnic background), we found a large degree of consistency between the groups in their attitudes toward the ethical topic areas and the need for guiding ethical principles, but also some differences related to privacy, consent, and confidence in the neural device industry to incorporate ethical concerns into the design process. These data have implications for industry professionals tasked with designing and disseminating new neural devices, end-users of their products, and stakeholders at each step in between who must navigate the rapidly-growing landscape of advances in neurotechnology.

摘要

神经技术正在迅速发展,旨在减轻疾病带来的痛苦,并帮助各种残疾人士。随着神经设备的功能和应用的不断发展,与代理、身份、隐私、平等、常态和正义相关的潜在伦理挑战已引起关注。我们试图在两个重要但研究较少的利益相关者群体中探讨这些伦理挑战的态度:神经设备行业的成员和普通公众。我们收集了来自 66 名行业专业人士和 1088 名不从事神经设备工作的普通公众的调查回复。在控制了群体之间的人口统计学差异(行业与普通公众;年龄、性别、种族/民族背景)后,我们发现两组在对伦理主题领域的态度以及对指导伦理原则的需求方面存在很大程度的一致性,但也存在一些与隐私、同意和对神经设备行业将伦理问题纳入设计过程的信心相关的差异。这些数据对负责设计和传播新型神经设备的行业专业人士、其产品的最终用户以及每个环节的利益相关者都有影响,他们必须在神经技术快速发展的背景下进行导航。

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