Department of Health Sciences, Lund University, S-221 00 Lund, Sweden.
Department of Neurology, Rehabilitation Medicine, Memory Disorders and Geriatrics, Skåne University Hospital, S-221 85 Lund, Sweden.
Int J Environ Res Public Health. 2021 Mar 23;18(6):3308. doi: 10.3390/ijerph18063308.
Persons with Parkinson's disease (PD) need to adapt to their progressive disability to achieve and maintain a high degree of life satisfaction (LS), but little is known about the meaning of LS and adaptation. This study aimed to gain an in-depth understanding of the meaning of LS and adaptation in persons with PD. Open-ended in-depth interviews were performed with 13 persons diagnosed with PD, 9 women, 3 men, and one non-binary person (mean age 54 years, mean time since diagnosis 3.4 years). The interviews were analyzed using a phenomenological-hermeneutic approach. The participants were in the process of adapting to their new health situation. There were two quite distinct groups: one that adapted through acceptance and one that struggled to resist the disease and the profound impact it had on their lives. The thematic structural analysis covers eight themes illustrating the meaning of LS and adaptation, through either acceptance or resistance. Adaptation to PD involves a transitional process characterized by either acceptance or resistance, which influences a person's LS. Acceptance makes LS possible, whereas resistance constitutes a behavioral barrier to adaptation and LS. Rehabilitation professionals need to understand this individual process to be able to support a person with PD to reach and maintain a high level of LS. Understanding the link between LS and adaptation can support rehabilitation professionals to provide targeted interventions for people with PD.
帕金森病患者（PD）需要适应其进行性残疾，以实现并保持高度的生活满意度（LS），但对于 LS 和适应的含义知之甚少。本研究旨在深入了解 PD 患者 LS 和适应的含义。对 13 名被诊断患有 PD 的患者（9 名女性，3 名男性，1 名非二元性别者）进行了开放式深入访谈，平均年龄为 54 岁，平均诊断后时间为 3.4 年。使用现象学-解释学方法对访谈进行了分析。参与者正在适应他们的新健康状况。有两个截然不同的群体：一个通过接受来适应，另一个则努力抗拒疾病及其对生活的深远影响。主题结构分析涵盖了八个主题，通过接受或抵抗来阐明 LS 和适应的含义。对 PD 的适应涉及一个过渡过程，其特征是接受或抵抗，这会影响一个人的 LS。接受使 LS 成为可能，而抵抗则构成适应和 LS 的行为障碍。康复专业人员需要了解这一个体化过程，以便能够支持 PD 患者达到并保持高度的 LS。了解 LS 和适应之间的联系可以帮助康复专业人员为 PD 患者提供有针对性的干预措施。
