Dan Bernard
Université libre de Bruxelles, Brussels, Belgium.
Inkendaal Rehabilitation Hospital, Vlezenbeek, Belgium.
Front Neurol. 2021 Mar 19;12:650653. doi: 10.3389/fneur.2021.650653. eCollection 2021.
Current societal and technological changes have added to the ethical issues faced by people with cerebral palsy. These include new representations of disability, and the current International Classification of Functioning, Disability, and Health, changes in legislation and international conventions, as well as applications of possibilities offered by robotics, brain-computer interface devices, muscles and brain stimulation techniques, wearable sensors, artificial intelligence, genetics, and more for diagnostic, therapeutic, or other purposes. These developments have changed the way we approach diagnosis, set goals for intervention, and create new opportunities. This review examines those influences on clinical practice from an ethical perspective and highlights how a principled approach to clinical bioethics can help the clinician to address ethical dilemmas that occur in practice. It also points to implications of those changes on research priorities.
当前的社会和技术变革增加了脑瘫患者面临的伦理问题。这些问题包括对残疾的新认知、现行的《国际功能、残疾和健康分类》、法律法规和国际公约的变化,以及机器人技术、脑机接口设备、肌肉和脑刺激技术、可穿戴传感器、人工智能、遗传学等为诊断、治疗或其他目的所提供的可能性的应用。这些发展改变了我们进行诊断的方式、设定干预目标的方式,并创造了新的机会。本综述从伦理角度审视了这些对临床实践的影响,并强调了临床生物伦理学的原则性方法如何帮助临床医生解决实践中出现的伦理困境。它还指出了这些变化对研究重点的影响。