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居家姑息治疗专业人员对新冠疫情期间挑战的认知:一项定性研究。

Home palliative care professionals perception of challenges during the Covid-19 outbreak: A qualitative study.

作者信息

Franchini Luca, Varani Silvia, Ostan Rita, Bocchi Ilenia, Pannuti Raffaella, Biasco Guido, Bruera Eduardo

机构信息

National Tumor Assistance (ANT), Bologna, Italy.

University of Bologna, Bologna, Italy.

出版信息

Palliat Med. 2021 May;35(5):862-874. doi: 10.1177/02692163211008732. Epub 2021 Apr 8.

Abstract

BACKGROUND

Home palliative care services have played an essential role during the first wave of the SARS-CoV-2 outbreak by providing symptom control, drug procurement, and psychological support for frail patients and their families unable to leave their homes.

AIM

To understand how home palliative care professionals were affected by the outbreak, describing changes and challenges in their daily work as well as their reactions to the Covid-19 pandemic in Italy.

DESIGN

Qualitative study conducted using telephone semi-structured interviews, with thematic analysis.

SETTING/PARTICIPANTS: Thirty home care professionals working for an Italian non-profit organization which provides home palliative care for cancer patients and their families.

RESULTS

Three main themes were identified. The first theme showed both and challenges participants faced in their daily work, requiring the implementation of different communication methods and patient and family education on risk prevention. The second theme showed the perception of increased responsibility and being the only landmark for family played a decisive role in participants' positive attitude. The third theme highlighted the participants' perception of the critical role of a home care setting in this emergency situation.

CONCLUSIONS

The first wave of the Covid-19 pandemic brought many challenges and stressors for home palliative care professionals. On the other side, they reported a satisfaction with their critical role in carrying out their work with patients at risk.

摘要

背景

在严重急性呼吸综合征冠状病毒2(SARS-CoV-2)疫情的第一波期间,居家姑息治疗服务通过为体弱且无法离家的患者及其家人提供症状控制、药品采购和心理支持发挥了重要作用。

目的

了解居家姑息治疗专业人员如何受到疫情影响,描述他们日常工作中的变化和挑战以及他们对意大利新冠疫情的反应。

设计

采用电话半结构化访谈进行定性研究,并进行主题分析。

背景/参与者:为一家为癌症患者及其家人提供居家姑息治疗的意大利非营利组织工作的30名居家护理专业人员。

结果

确定了三个主要主题。第一个主题显示了参与者在日常工作中面临的变化和挑战,需要实施不同的沟通方法以及对患者和家属进行风险预防教育。第二个主题表明,责任感增强以及成为家庭的唯一依靠在参与者的积极态度中起了决定性作用。第三个主题强调了参与者对居家护理环境在这种紧急情况下的关键作用的认识。

结论

新冠疫情的第一波给居家姑息治疗专业人员带来了许多挑战和压力源。另一方面,他们对自己在为处于危险中的患者开展工作中所起的关键作用表示满意。

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