School of Nursing and Midwifery, Western Sydney University, Penrith, Australia.
Research & Youth Cancer Services, Canteen Australia, Newtown, Australia.
J Adolesc Young Adult Oncol. 2022 Feb;11(1):27-34. doi: 10.1089/jayao.2020.0185. Epub 2021 Apr 12.
Receiving a cancer diagnosis for young people is likely to adversely impact the individual's quality of life. Mindfulness-based interventions (MBIs) are an emerging strategy used to improve psychosocial well-being. However, challenges have been reported in relation to adherence and accessibility of face-to-face mindfulness programs among young people. This study examined the feasibility and acceptability of a mindfulness-based interactive e-Book to improve psychosocial well-being of young people with cancer. Concurrent mixed methods approach with a pre-intervention-post-intervention survey and semistructured interviews evaluated the feasibility and acceptability of a MBI delivered over a 6-week period, and its effect on psychosocial well-being of young people with cancer 15 to 24 years of age. Of the 31 young people, both survivors and on active treatment, enrolled in the study, 20 (64.5%) completed the post-intervention survey. Textual data and interviews ( = 3) revealed that young people enjoyed the intervention and found it useful and easy to navigate, but wanted more attention paid to cancer-specific stressors, as well as opportunities for face-to-face or online interactions. Psychosocial well-being measures demonstrated a statistically significant decrease in depressive symptoms (2.35 to 1.25, = 0.03) and psychological distress (23.63 to 19.79, = 0.03), along with nonsignificant increases in mindfulness (20.05 to 22.9, = 0.08) and quality of life (62.0 to 69.1, = 0.13). Young people found the self-help MBI, delivered in an interactive e-Book platform, useful and acceptable. There were psychosocial benefits, although recruitment and retention were study challenges and can be improved in future research.
年轻人被诊断出癌症可能会对其生活质量产生不利影响。基于正念的干预措施（MBI）是一种新兴策略，用于改善心理健康。然而，据报道，年轻人在坚持和获得面对面的正念课程方面存在挑战。本研究旨在探讨基于正念的互动电子图书在改善年轻癌症患者的心理健康方面的可行性和可接受性。采用预干预后调查和半结构化访谈的同期混合方法，评估了为期 6 周的 MBI 的可行性和可接受性，以及其对 15 至 24 岁癌症青年心理健康的影响。在参加这项研究的 31 名年轻人中，包括幸存者和正在接受积极治疗的患者，有 20 名（64.5%）完成了干预后的调查。文本数据和访谈（ = 3）表明，年轻人喜欢这项干预措施，认为它有用且易于操作，但希望更多地关注癌症特异性压力源，以及提供面对面或在线互动的机会。心理健康测量显示，抑郁症状（2.35 降至 1.25， = 0.03）和心理困扰（23.63 降至 19.79， = 0.03）显著下降，正念（20.05 升至 22.9， = 0.08）和生活质量（62.0 升至 69.1， = 0.13）略有升高。年轻人认为基于正念的自助干预措施，以互动电子书的形式呈现，是有用和可接受的。尽管招募和保留是研究中的挑战，但研究结果表明该干预措施具有心理效益，在未来的研究中可以进行改进。
