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培育相互关系:香港社区临终关怀的定性研究。

Cultivating mutuality: A qualitative study of community end-of-life care in Hong Kong.

机构信息

Department of Sociology and Criminology, University of Manitoba, Winnipeg, Manitoba, Canada.

出版信息

Health Soc Care Community. 2022 May;30(3):1189-1198. doi: 10.1111/hsc.13391. Epub 2021 Apr 14.

DOI:10.1111/hsc.13391
PMID:33852734
Abstract

In Hong Kong, death and dying are identified as a crucial public health issue, and as the healthcare system has developed, there has been a shift of some care for dying people and their families to cross-disciplinary collaboration in community settings. This shift enhances the salience of social relationships in non-medical forms of community-based end-of-life (EOL) care. The purpose of this paper is to contribute to knowledge about relational development in this regard. Abductive grounded theory methodology was used to examine the complex dynamics and mechanisms involved in cultivating mutuality between dying people (and their families) and volunteers and professionals in two community-based EOL social service agencies in Hong Kong. Qualitative data were collected between June and December 2019 using in-depth interviews with 14 agency practitioners and two theoretically sampled service users. Theoretical coding followed open coding to reach theoretical saturation. Cultivating mutuality was found to entail processes of finding social commonalities (and hiding differences), immersing in routines, supporting actualisation (granting the wishes of dying persons and their families) and engaging with clients' emotions (encouraging emotional release, demonstrating emotional involvement and actively listening). Findings offered a novel symbolic interactive and relational understanding of community EOL care practice. Contributions include theorising social processes in an intermediate stage of social capital and compassionate community development.

摘要

在香港,死亡和临终被视为一个重要的公共卫生问题,随着医疗保健系统的发展,一些临终关怀和家庭关怀已经转移到社区环境中的跨学科合作。这种转变增强了社会关系在非医疗形式的社区临终关怀中的重要性。本文旨在为这方面的知识发展做出贡献。采用归纳扎根理论方法,研究了在香港两个社区临终关怀社会服务机构中,临终者(及其家属)与志愿者和专业人员之间培养相互关系的复杂动态和机制。2019 年 6 月至 12 月期间,通过对 14 名机构从业人员和 2 名理论抽样服务使用者进行深入访谈,收集了定性数据。理论编码遵循开放式编码,以达到理论饱和度。培养相互关系需要经历寻找社会共同点(和隐藏差异)、沉浸在常规中、支持实现(满足临终者及其家属的愿望)和与客户的情感互动(鼓励情感释放、表现出情感投入和积极倾听)。研究结果提供了对社区临终关怀实践的一种新的象征性互动和关系理解。研究的贡献包括在社会资本和富有同情心的社区发展的中间阶段理论化社会过程。

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