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本文引用的文献

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Spiritual care in neonatology: analysis of emergency baptisms in an Irish neonatal unit over 15 years.新生儿科的精神关怀:对爱尔兰一家新生儿病房15年来紧急洗礼情况的分析。
Ir J Med Sci. 2019 May;188(2):607-612. doi: 10.1007/s11845-018-1894-y. Epub 2018 Aug 27.
2
Use of spiritual coping strategies by gender, race/ethnicity, and religion at 1 and 3 months after infant's/child's intensive care unit death.婴儿/儿童重症监护病房死亡后1个月和3个月时,按性别、种族/族裔和宗教划分的精神应对策略的使用情况。
J Am Assoc Nurse Pract. 2017 Oct;29(10):591-599. doi: 10.1002/2327-6924.12498. Epub 2017 Aug 23.
3
Attitudes Towards Prenatal Genetic Counseling, Prenatal Genetic Testing, and Termination of Pregnancy among Southeast and East Asian Women in the United States.美国东南亚和东亚女性对产前遗传咨询、产前基因检测及终止妊娠的态度
J Genet Couns. 2017 Oct;26(5):1041-1058. doi: 10.1007/s10897-017-0084-9. Epub 2017 Mar 2.
4
Understanding the role of religious views in the discussion about resuscitation at the threshold of viability.理解宗教观点在关于可存活界限时的复苏讨论中的作用。
J Perinatol. 2016 Sep;36(9):694-8. doi: 10.1038/jp.2016.104.
5
Spiritual Needs of Families With Bereavement and Loss of an Infant in the Neonatal Intensive Care Unit: A Qualitative Study.新生儿重症监护病房中经历丧亲之痛和婴儿夭折的家庭的精神需求:一项定性研究。
J Pain Symptom Manage. 2016 Jul;52(1):35-42. doi: 10.1016/j.jpainsymman.2015.12.344. Epub 2016 May 24.
6
The Meaning of Food and Multicultural Implications for Perinatal Palliative Care.食物的意义及围产期姑息治疗的多元文化影响
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Babies born dying: just bad karma? A discussion paper.出生时濒死的婴儿:只是厄运吗?一篇讨论文件。
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End-of-life care in Toronto neonatal intensive care units: challenges for physician trainees.多伦多新生儿重症监护病房的临终关怀:医师培训生面临的挑战。
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Withdrawal of life-sustaining treatment for newborn infants from a Hindu perspective.从印度教视角看新生儿生命维持治疗的撤除
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Exploring the role of religiosity and spirituality in amniocentesis decision-making among Latinas.探索宗教信仰和精神性在拉丁裔女性羊膜穿刺术决策中的作用。
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围产期姑息治疗:父母的文化、精神和宗教考量——临床医生需要了解的内容。

Perinatal Palliative Care: Cultural, Spiritual, and Religious Considerations for Parents-What Clinicians Need to Know.

作者信息

Kain Victoria J

机构信息

Griffith Health, Griffith University, Southport, QLD, Australia.

出版信息

Front Pediatr. 2021 Mar 30;9:597519. doi: 10.3389/fped.2021.597519. eCollection 2021.

DOI:10.3389/fped.2021.597519
PMID:33859968
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8042426/
Abstract

For perinatal palliative care (PPC) to be truly holistic, it is imperative that clinicians are conversant in the cultural, spiritual and religious needs of parents. That cultural, spiritual and religious needs for parents should be sensitively attended to are widely touted in the PPC literature and extant protocols, however there is little guidance available to the clinician as to how to meet these needs. The objective of this review article is to report what is known about the cultural, spiritual and religious practices of parents and how this might impact neonates who are born with a life-limiting fetal diagnosis (LLFD). The following religions will be considered-Islam, Buddhism, Hinduism, Judaism, and Christianity-in terms of what may be helpful for clinicians to consider regarding rituals and doctrine related to PPC. Data Sources include PubMed, Ovid, PsycInfo, CINAHL, and Medline from Jan 2000-June 2020 using the terms "perinatal palliative care," "perinatal hospice," "cultur," and "religiou." Inclusion criteria includes all empirical and research studies published in English that focus on the cultural and religious needs of parents who opted to continue a pregnancy in which the fetus had a life-limiting condition or had received perinatal palliative care. Gray literature from religious leaders about the Great Religions were also considered. Results from these sources contributing to the knowledge base of cultural, spiritual and religious dimensions of perinatal palliative care are considered in this paper.

摘要

为了使围产期姑息治疗(PPC)真正做到全面,临床医生必须熟悉父母的文化、精神和宗教需求。父母的文化、精神和宗教需求应得到敏感关注,这在PPC文献和现有方案中被广泛提及,然而,对于临床医生如何满足这些需求,几乎没有可用的指导。这篇综述文章的目的是报告关于父母的文化、精神和宗教习俗的已知情况,以及这可能如何影响患有致命性胎儿诊断(LLFD)的新生儿。将从与PPC相关的仪式和教义方面,考虑以下宗教——伊斯兰教、佛教、印度教、犹太教和基督教——对临床医生可能有帮助的方面。数据来源包括2000年1月至2020年6月期间的PubMed、Ovid、PsycInfo、CINAHL和Medline,使用的检索词为“围产期姑息治疗”、“围产期临终关怀”、“文化”和“宗教”。纳入标准包括所有以英文发表的实证研究和研究,这些研究关注选择继续妊娠的父母的文化和宗教需求,其中胎儿患有致命性疾病或接受了围产期姑息治疗。还考虑了宗教领袖关于各大宗教的灰色文献。本文考虑了这些来源中有助于围产期姑息治疗文化、精神和宗教层面知识库的结果。