Grauerholz Kathryn R, Fredenburg Michaelene, Jones Premala Tara, Jenkins Kristy N
Life Perspectives, San Diego, CA, United States.
Counseling and Testing Center, University of Akron, Akron, OH, United States.
Front Pediatr. 2020 Oct 8;8:572933. doi: 10.3389/fped.2020.572933. eCollection 2020.
The demands on healthcare professionals caring for families grappling with a life-limiting condition in an unborn or newly born child can be overwhelming. Clinicians working in emergency/trauma, hospice, and pediatric settings are already at high risk for burnout and compassion fatigue, which can leave healthcare institutions increasingly vulnerable to poor retention, absenteeism, and waning quality of care. The provision of exemplary palliative care requires a cohesive interdisciplinary team of seasoned professionals resilient to daily challenges. In September 2019, the American College of Gynecology, in a committee opinion, published standard of care guidelines for perinatal palliative care. This has created an impetus for exceptional caregiving and a greater demand for both physician and interdisciplinary healthcare provider education, training, and ongoing support that promotes truly beneficent care for pregnant patients confronted with life-limiting fetal conditions. A scoping review of the research literature was conducted in order to distinguish the barriers and facilitators of professional resiliency in perinatal palliative care. PubMed, Medline, CINAHL, and EBSCO Psychology & Behavioral Sciences Collections were systematically reviewed. Because of the paucity of studies specific to perinatal palliative care, several interviews of nurses and physicians in that field were conducted and analyzed for content distinctly pertaining to personal practices or workplace factors that support or hinder professional resiliency. The research indicated that medical professionals often cite a lack of knowledge, inexperience using effective communication skills related to perinatal palliative care and bereavement, challenges with interdisciplinary collaboration, misconceptions about the role and function of palliative care in the perinatal or neonatal settings, moral distress, and workload challenges as encumbrances to professional satisfaction. Strategic implementation of facility-wide bereavement care training, effective communication modalities, and evidenced-based practical applications are critical components for a thriving perinatal palliative care team. Authentic formal and informal debriefing, peer mentoring, adequate caseloads, robust provider self-care practices, exceptional relational efficacy, and cultural and spiritual humility can foster personal growth and even vicarious resilience for perinatal palliative care professionals. Support should be strategic and multifaceted. The onus to implement salient measures to cultivate resilience in the perinatal palliative caregiver should not be only upon the individuals themselves but also upon prevailing regulatory governing bodies and healthcare institutions.
对于照顾那些正在与未出生或新生儿的生命受限状况作斗争的家庭的医疗保健专业人员来说,需求可能是压倒性的。在急诊/创伤、临终关怀和儿科环境中工作的临床医生已经面临着职业倦怠和同情疲劳的高风险,这可能使医疗机构越来越容易受到人员留用率低、旷工和护理质量下降的影响。提供模范的姑息治疗需要一个由经验丰富的专业人员组成的有凝聚力的跨学科团队,能够应对日常挑战。2019年9月,美国妇产科学院在一份委员会意见中发布了围产期姑息治疗的护理标准指南。这为卓越的护理提供了动力,并对医生和跨学科医疗保健提供者的教育、培训以及持续支持提出了更高的要求,以促进对面临胎儿生命受限状况的孕妇提供真正有益的护理。为了区分围产期姑息治疗中专业复原力的障碍和促进因素,对研究文献进行了范围审查。对PubMed、Medline、CINAHL和EBSCO心理学与行为科学数据库进行了系统审查。由于围产期姑息治疗的具体研究较少,因此对该领域的护士和医生进行了几次访谈,并对与支持或阻碍专业复原力的个人做法或工作场所因素明显相关的内容进行了分析。研究表明,医疗专业人员经常提到缺乏知识、在使用与围产期姑息治疗和丧亲之痛相关的有效沟通技巧方面缺乏经验、跨学科合作的挑战、对姑息治疗在围产期或新生儿环境中的作用和功能的误解、道德困扰以及工作量挑战是职业满意度的障碍。在全机构范围内实施丧亲护理培训、有效的沟通方式以及基于证据的实际应用的战略实施是蓬勃发展的围产期姑息治疗团队的关键组成部分。真实的正式和非正式汇报、同伴指导、适当的工作量、强大的提供者自我护理做法、卓越的关系效能以及文化和精神上的谦逊可以促进围产期姑息治疗专业人员的个人成长,甚至产生替代性复原力。支持应该是战略性的和多方面的。实施显著措施以培养围产期姑息治疗提供者复原力的责任不应仅落在个人身上,还应落在现行的监管机构和医疗机构身上。