Department of Epidemiology and Biostatistics, University of California San Francisco, San Francisco, CA; Department of Obstetrics, Gynecology, and Reproductive Sciences, University of California San Francisco, San Francisco, CA.
Department of Child, Family, and Population Health Nursing, University of Washington, Seattle, WA.
Am J Obstet Gynecol. 2021 Oct;225(4):427.e1-427.e13. doi: 10.1016/j.ajog.2021.04.216. Epub 2021 Apr 20.
Given the stark disparities in maternal mortality and adverse birth outcomes among Black, indigenous, and other people of color, there is a need to better understand and measure how individuals from these communities experience their care during pregnancy.
This study aimed to develop and validate a tool that can be used to measure person-centered prenatal care that reflects the experiences of people of color.
We followed standard procedures for scale development-integrated with community-based participatory approaches-to adapt a person-centered maternity care scale that was initially developed and validated for intrapartum care in low-resource countries to reflect the needs and prenatal care experiences of people of color in the United States. The adaptation process included expert reviews with a Community Advisory Board, consisting of community members, community-based health workers, and social service providers from San Francisco, Oakland, and Fresno, to assess content validity. We conducted cognitive interviews with potential respondents to assess the clarity, appropriateness, and relevance of the questions, which were then refined and administered in an online survey to people in California who had given birth in the past year. Data from 293 respondents (84% of whom identified as Black) who received prenatal care were used in psychometric analysis to assess construct and criterion validity and reliability.
Exploratory factor analysis yielded 3 factors with eigenvalues of >1, but with 1 dominant factor. A 34-item version of the person-centered prenatal care scale was developed based on factor analyses and recommendations from the Community Advisory Board. We also developed a 26-item version using stricter criteria for relevance, factor loadings, and uniqueness. Items were grouped into 3 conceptual domains representing subscales for "dignity and respect," "communication and autonomy," and "responsive and supportive care." The Cronbach alphas for the 34-item and the 26-item versions and for the subscales were >0.8. Scores based on the sum of responses for the 2 person-centered prenatal care scale versions and all subscales were standardized to range from 0 to 100, where higher scores indicate more person-centered prenatal care. These scores were correlated with global measures of prenatal care satisfaction suggesting good criterion validity.
We present 2 versions of the person-centered prenatal care scale: a 34-item and a 26-item version. Both versions have high validity and reliability in a sample made up predominantly of Black women. This scale will facilitate measurement to improve person-centered prenatal care for people of color and could contribute to reducing disparities in birth outcomes. The similarity with the original scale also suggests that the person-centered prenatal care may be applicable across different contexts. However, validation with more diverse samples in additional settings is needed.
鉴于黑人和原住民以及其他有色人种在孕产妇死亡率和不良分娩结果方面存在明显差异,因此需要更好地了解和衡量这些群体在怀孕期间如何体验他们的护理。
本研究旨在开发和验证一种工具,用于衡量反映有色人种体验的以个人为中心的产前护理。
我们遵循了量表开发的标准程序——结合基于社区的参与性方法——对最初为资源匮乏国家的分娩期间护理开发和验证的以个人为中心的产妇护理量表进行了改编,以反映美国有色人种的需求和产前护理体验。改编过程包括由社区成员、社区卫生工作者和来自旧金山、奥克兰和弗雷斯诺的社会服务提供者组成的社区咨询委员会进行专家审查,以评估内容效度。我们对潜在受访者进行了认知访谈,以评估问题的清晰度、适当性和相关性,然后对其进行了改进,并在加利福尼亚州过去一年分娩的人群中进行了在线调查。来自 293 名受访者(84%的受访者为黑人)的数据用于心理测量分析,以评估结构效度、标准效度和信度。
探索性因素分析得出了 3 个特征值大于 1 的因素,但有 1 个主导因素。基于因素分析和社区咨询委员会的建议,制定了一个 34 项的以个人为中心的产前护理量表版本。我们还根据相关性、因子负荷和独特性的更严格标准制定了一个 26 项的版本。项目分为代表“尊严和尊重”、“沟通和自主权”和“响应和支持性护理”的 3 个概念领域。34 项和 26 项版本以及所有亚量表的克朗巴赫阿尔法系数均大于 0.8。基于 2 个以个人为中心的产前护理量表版本和所有亚量表的响应总和的分数标准化为 0 到 100,分数越高表示以个人为中心的产前护理越好。这些分数与产前护理满意度的全球衡量标准相关,表明具有良好的标准效度。
我们提出了以个人为中心的产前护理量表的 2 个版本:一个 34 项版本和一个 26 项版本。这两个版本在主要由黑人女性组成的样本中具有较高的有效性和可靠性。该量表将促进衡量以改善有色人种的以个人为中心的产前护理,并有助于减少出生结果方面的差异。与原始量表的相似性表明,以个人为中心的产前护理可能适用于不同的背景。然而,需要在其他环境中用更多样化的样本进行验证。