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“与疾病共存总有办法”——中国心血管疾病住院患者报告的自我管理策略:一项描述性定性研究。

'There is always a way to living with illness'-Self-management strategies reported by Chinese hospitalized patients with cardiovascular disease: A descriptive qualitative study.

作者信息

Qiu Ruolin, Schick-Makaroff Kara, Tang Leiwen, Wang Xiyi, Zhang Qi, Ye Zhihong

机构信息

Affiliated Sir Run Run Shaw Hospital, Zhejiang University School of Medicine, Hangzhou, Zhejiang, China.

Faculty of Nursing, University of Alberta, Edmonton Clinic Health Academy, Edmonton, Alberta, Canada.

出版信息

Int J Health Plann Manage. 2021 Jul;36(4):1260-1275. doi: 10.1002/hpm.3172. Epub 2021 Apr 16.

Abstract

OBJECTIVES

Patients living with cardiovascular diseases use different strategies to solve various problems. This study aimed to identify the category, type and specific self-management strategies reported by hospitalized patients with cardiovascular diseases.

METHODS

This is a qualitative descriptive study. Twenty-eight individuals with cardiovascular diseases from a Cardiology Department affiliated with a school in China were recruited by purposive sampling. Face-to-face semi-structured interviews were used. The interviews were audio-recorded, transcribed, translated and analysed by using content analysis.

RESULTS

Five self-management strategy categories (medical and alternative therapy uptake, risk assessment and avoidance, resource seeking and utilization, maintaining normality, and optional management), and seventeen self-management strategy types, encompassing one hundred and ten specific strategies were identified. The most commonly used self-management strategy types were lifestyle adjustment (eleven strategies), self-maintenance (nine strategies) and problem-solving (nine strategies). Additionally, the most described explicit self-management strategies were receiving family/colleague support, maintaining daily routines, monitoring symptoms and managing side effects, discussing with professionals, using medicines, and improving awareness.

CONCLUSION

This study identified diverse strategies reported by some Chinese cardiovascular patients. It may inform the design and development of personalized self-management interventions for health practitioners and policymakers, helping cardiovascular patients in Chinese communities worldwide receive culture-tailored services.

摘要

目的

患有心血管疾病的患者会采用不同策略来解决各种问题。本研究旨在确定住院心血管疾病患者报告的自我管理策略类别、类型和具体策略。

方法

这是一项定性描述性研究。通过目的抽样法从中国一所学校附属心脏病科招募了28名心血管疾病患者。采用面对面半结构式访谈。访谈进行录音、转录、翻译并运用内容分析法进行分析。

结果

确定了五类自我管理策略(医疗及替代疗法采用、风险评估与规避、资源寻求与利用、保持正常状态以及选择性管理),以及十七种自我管理策略类型,包含一百一十条具体策略。最常用的自我管理策略类型为生活方式调整(十一条策略)、自我维护(九条策略)和问题解决(九条策略)。此外,提及最多的明确自我管理策略为获得家人/同事支持、维持日常活动、监测症状和管理副作用、与专业人员讨论、使用药物以及提高认识。

结论

本研究确定了一些中国心血管疾病患者报告的多种策略。这可能为医护人员和政策制定者设计和开发个性化自我管理干预措施提供参考,帮助全球华人社区的心血管疾病患者获得符合文化特点的服务。

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