Gulhane Faculty of Nursing, Department of Internal Medicine Nursing, University of Health Sciences Turkey, ANKARA, Turkey.
Int J Nurs Pract. 2022 Jun;28(3):e12946. doi: 10.1111/ijn.12946. Epub 2021 Apr 17.
The aim of this research was to provide an in-depth study about the life experiences of patients with inflammatory bowel diseases.
The phenomenological (hermeneutic) method was used to analyse data. The data were collected between March 25 and July 1, 2019. A homogeneous group of 25 patients were included as participants by purposeful sampling methods. Interviews were conducted in the hospital patient-education room.
The results of this study emphasize the importance of understanding the fears, worries, difficulties and life experiences of patients with inflammatory bowel diseases. Three main themes were identified: a flare phase of the disease, a remission period and coping behaviours. Study findings included the experiences of social isolation; inability to perform daily activities of living and to work; stress in the flare phase of the disease; concerns about the future in the remission phase and physical and spiritual strategies used for coping.
Coping with the physical symptoms and emotional difficulties of inflammatory bowel diseases can prevent patients from living a normal life. The results of this article highlight the importance of understanding the fear, anxiety, difficulties and life experiences of these patients.
本研究旨在深入研究炎症性肠病患者的生活经历。
采用现象学（解释学）方法对数据进行分析。数据于 2019 年 3 月 25 日至 7 月 1 日收集。通过目的抽样方法，将 25 名同质患者纳入研究组。访谈在医院病人教育室进行。
本研究结果强调了理解炎症性肠病患者的恐惧、担忧、困难和生活经历的重要性。确定了三个主要主题：疾病发作期、缓解期和应对行为。研究结果包括社会孤立的经历；无法进行日常活动和工作；疾病发作期的压力；缓解期对未来的担忧以及应对疾病所采取的身体和精神策略。
应对炎症性肠病的身体症状和情绪困难可防止患者过正常生活。本文的研究结果强调了理解这些患者的恐惧、焦虑、困难和生活经历的重要性。
