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高热惊厥后需要传达的信息的共识声明。

Consensus statements on the information to deliver after a febrile seizure.

机构信息

APHP. Service de Neurologie Pédiatrique, Hôpital Robert Debré, Paris, France.

Université de Paris, INSERM NeuroDiderot, Paris, France.

出版信息

Eur J Pediatr. 2021 Sep;180(9):2993-2999. doi: 10.1007/s00431-021-04067-2. Epub 2021 Apr 17.

DOI:10.1007/s00431-021-04067-2
PMID:33866403
Abstract

Febrile seizures (FS) are usually self-limiting and cause no morbidity. Nevertheless they represent very traumatic events for families. There is a need to identify key messages that reassure carers and help to prevent inappropriate, anxiety-driven behaviors associated with "fever phobia." No recommendations have been proposed to date regarding the content of such messages. Using a Delphi process, we have established a consensus regarding the information to be shared with families following a FS. Twenty physicians (child neurologists and pediatricians) from five European countries participated in a three-step Delphi process between May 2018 and October 2019. In the first step, each expert was asked to give 10 to 15 free statements about FS. In the second and third steps, statements were scored and selected according to the expert ranking of importance. A list of key messages for families has emerged from this process, which offer reassurance about FS based on epidemiology, underlying mechanisms, and the emergency management of FS should they recur. Interestingly, there was a high level of agreement between child neurologists and general pediatricians.Conclusion: We propose key messages to be communicated with families in the post-FS clinic setting. What is Known: • Febrile seizures (FS) are traumatic events for families. • No guidelines exist on what information to share with parents following a FS. What is New: • A Delphi process involving child neurologists and pediatricians provides consensual statement about information to deliver after a febrile seizure. • We propose key messages to be communicated with families in the post-FS clinic setting.

摘要

热性惊厥(FS)通常是自限性的,不会引起任何发病率。然而,它们对家庭来说是非常创伤性的事件。需要确定关键信息,以安抚照顾者,并帮助预防与“发热恐惧症”相关的不适当、焦虑驱动的行为。迄今为止,尚未提出关于此类信息内容的建议。我们使用德尔菲(Delphi)流程,就 FS 后与家庭分享的信息达成了共识。来自五个欧洲国家的 20 名医生(儿童神经病学家和儿科医生)参加了 2018 年 5 月至 2019 年 10 月之间的三阶段 Delphi 流程。在第一步中,每位专家被要求就 FS 发表 10 到 15 条自由陈述。在第二步和第三步中,根据专家的重要性排名对陈述进行评分和选择。从这个过程中出现了一系列针对家庭的关键信息,这些信息基于 FS 的流行病学、潜在机制和紧急管理提供了有关 FS 的保证。有趣的是,儿童神经病学家和普通儿科医生之间存在高度共识。结论:我们提出了在 FS 后诊所环境中与家庭沟通的关键信息。已知:• FS 对家庭来说是创伤性事件。• 尚无关于 FS 后与父母分享哪些信息的指南。新内容:• 涉及儿童神经病学家和儿科医生的 Delphi 流程提供了关于 FS 后传递的信息的共识陈述。• 我们提出了在 FS 后诊所环境中与家庭沟通的关键信息。

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Efficacy of an interventional educational programme in mitigating post-traumatic stress in parents who have witnessed a febrile seizure: a pilot before-and-after study.一项干预性教育计划对减轻目睹热性惊厥患儿的家长创伤后应激反应的效果:一项前后对照的试点研究。
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