Department of Clinical Speech and Language Studies, Trinity College Dublin, Dublin, Ireland.
Disabil Rehabil. 2022 Aug;44(17):4579-4589. doi: 10.1080/09638288.2021.1913247. Epub 2021 Apr 20.
To conduct a systematic review of the involvement of siblings of individuals with a disability in therapeutic interventions to explore (a) sibling roles, (b) reported outcomes related to participant skills, interactions, or relationships, and (c) participant experiences.
A search of popular databases and grey literature was completed identifying studies published in English from 1999-2020. In total, 14,815 citations were extracted. Following a review of titles and abstracts, 31 studies met the inclusion criteria and were assessed for study quality.
The most common role assigned to siblings was that of a trained playmate ( = 11), followed by an untrained playmate ( = 5). Overall, the interventions reported positive outcomes, although sample sizes were small and variability in outcomes was high. None of the studies included adult participants and most ( = 28, 90.32%) included participants who had a diagnosis of Autism Spectrum Disorder (ASD). Over half of the studies reported participant experiences of the intervention, with most reporting positive experiences.
Notwithstanding the reported positive outcomes of the interventions in this review, further research is needed to better understand the specific impact of involving siblings in interventions, as is research with adult participants and participants with diagnoses other than ASD.Implications for RehabilitationSiblings can fulfil a range of roles, (e.g., trained playmate, instructor, model), when participating in interventions for an individual with a disability. frequently with positive outcomes.While overall involving siblings in interventions seems to lead to positive outcomes, the specific effect of involving a sibling (rather than a peer or parent) in an intervention is not clear.Most of the available research has focused on children with a diagnosis of autism spectrum disorder and so the findings may not apply across all disability groups.It is important to acknowledge sibling opinions about taking part in such interventions to ensure all participants' needs are being met.
对残疾个体兄弟姐妹参与治疗干预的研究进行系统综述，以探讨：(a) 兄弟姐妹的角色；(b) 与参与者技能、互动或关系相关的报告结果；以及 (c) 参与者的体验。
对热门数据库和灰色文献进行检索，检索自 1999 年至 2020 年发表的英文研究。共提取出 14815 条引文。在对标题和摘要进行审查后，有 31 项研究符合纳入标准，并对其研究质量进行了评估。
为兄弟姐妹分配的最常见角色是受过训练的玩伴（ = 11），其次是未受过训练的玩伴（ = 5）。总体而言，所报告的干预措施结果积极，但样本量小，结果差异大。没有研究纳入成年参与者，且大多数（ = 28，90.32%）研究纳入了被诊断为自闭症谱系障碍（ASD）的参与者。超过一半的研究报告了参与者对干预的体验，大多数报告了积极的体验。
尽管本综述中的干预措施报告了积极的结果，但仍需要进一步研究，以更好地了解让兄弟姐妹参与干预的具体影响，以及涉及成年参与者和除 ASD 以外的诊断参与者的研究。
当残疾个体参与干预时，兄弟姐妹可以发挥多种角色（例如，受过训练的玩伴、指导者、榜样），通常会产生积极的结果。
虽然让兄弟姐妹参与干预总体上似乎会带来积极的结果，但在干预中让兄弟姐妹（而不是同伴或父母）参与的具体效果尚不清楚。
现有的大部分研究都集中在被诊断为自闭症谱系障碍的儿童上，因此这些发现可能不适用于所有残疾群体。
重要的是要承认兄弟姐妹对参与此类干预的意见，以确保满足所有参与者的需求。
