Pediatric Rheumatology, Institute of Rheumatology, Tokyo Women's Medical University, Tokyo, Japan.
Department of Allergy and Rheumatology, Chiba Children's Hospital, Chiba, Japan.
Mod Rheumatol. 2022 Feb 28;32(2):427-431. doi: 10.1080/14397595.2021.1918858.
The Committee for Support of Transition to Adult Medical Care, Pediatric Rheumatology Association of Japan, has developed a checklist for patients with pediatric rheumatologic diseases to evaluate readiness for transition to adult medical care.
Using checklists for general pediatric chronic diseases developed by researchers at the Ministry of Health, Labour and Welfare, committee members discussed points for modification or addition specific to pediatric rheumatic diseases and pediatric rheumatism clinical practice.
Three patient-assessment checklists based on patient age and understanding level and a parent-assessment checklist were developed. The checklist for junior high school students and above included a 'Health Education in Adolescence and Young Adulthood' section with items related to sexual knowledge and concerns. Also, items on oral medications and subcutaneous injections management in the 'Self-management of Daily Medical Care,' domain and next medical visits management were added. The checklist for junior high school students included 30 items in seven domains and can be completed within 10 minutes. The checklist was given to 28 children with pediatric rheumatic diseases aged 10 years and older and their mothers.
The checklist was developed to share the challenges of independence during transition with patients and parents.
日本儿科风湿病协会支持过渡到成人医疗保健委员会制定了一份检查表，用于评估儿科风湿病患者过渡到成人医疗保健的准备情况。
使用厚生劳动省研究人员制定的一般儿科慢性病检查表，委员会成员讨论了针对儿科风湿病和儿科风湿病临床实践的修改或添加要点。
根据患者年龄和理解水平制定了三个患者评估检查表和一个家长评估检查表。为初中生及以上学生制定的检查表包括“青少年和青年期健康教育”部分，其中包含与性知识和关注点相关的项目。此外，在“日常医疗自我管理”领域和下一次就诊管理中添加了关于口服药物和皮下注射管理的项目。初中生检查表包括七个领域的 30 个项目，可在 10 分钟内完成。检查表分发给了 28 名年龄在 10 岁及以上的患有儿科风湿病的儿童及其母亲。
该检查表的制定是为了与患者和家长共同应对过渡期间独立的挑战。
