School of Health and Sport Science, University of the Sunshine Coast, Sippy Downs, QLD, Australia; School of Nursing, Midwifery and Social Sciences, CQUniversity Australia, Brisbane, QLD, Australia.
School of Health and Sport Science, University of the Sunshine Coast, Sippy Downs, QLD, Australia.
J Pain. 2021 Sep;22(9):1111-1128. doi: 10.1016/j.jpain.2021.03.151. Epub 2021 Apr 20.
Complex regional pain syndrome (CRPS) has never comprehensively been examined from a lived experience perspective. Patients generally have a poorer quality of life than people with other chronic pain conditions. This study aimed to understand the essence of living with CRPS. Data were collected from 17 patients via in-depth interviews. Hermeneutic discussions with four health professionals generated deeper insights. Internet blogs and a book containing patient stories were included for theme verification and triangulation. CRPS is seen as a war-like experience and five themes were identified within the battle: "dealing with the unknown enemy", "building an armoury against a moving target", "battles within the war", "developing battle plans with allies" and "warrior or prisoner of war". Patients live with a chronic pain condition and experience problems unique to CRPS such as fear of pain extending to other parts of their body. Use of the model generated by this research may assist patient/clinician interactions and guide therapeutic discussions. Support for people living with CRPS does not always exist, and some healthcare professionals require additional education about the condition. Better health outcomes are experienced by patients when their personal situation and experiences are heard and understood by health care professionals. PERSPECTIVE: This article presents the lived experience of CRPS. This information and the model generated can help clinicians to better understand their patients and deliver appropriate patient-centered care.
复杂性区域疼痛综合征（CRPS）从未从患者体验的角度进行全面检查。与其他慢性疼痛疾病的患者相比，CRPS 患者的生活质量通常更差。本研究旨在了解患有 CRPS 的本质。通过深入访谈从 17 名患者中收集数据。与四名健康专业人员进行的解释性讨论产生了更深入的见解。还包括患者的博客和包含患者故事的书籍，以验证主题并进行三角测量。CRPS 被视为一场战争般的经历，在这场战斗中有五个主题：“应对未知的敌人”、“针对移动目标建立武器库”、“战争中的战斗”、“与盟友制定作战计划”和“战士或战俘”。患者患有慢性疼痛疾病，并经历了 CRPS 独有的问题，例如对疼痛扩散到身体其他部位的恐惧。使用本研究生成的模型可以帮助患者/临床医生之间的互动，并指导治疗性讨论。并非总是为患有 CRPS 的人提供支持，并且一些医疗保健专业人员需要接受有关该病症的额外教育。当患者的个人情况和经历得到医疗保健专业人员的倾听和理解时，他们会获得更好的健康结果。观点：本文介绍了 CRPS 的患者体验。这些信息和生成的模型可以帮助临床医生更好地了解他们的患者，并提供以患者为中心的适当护理。
