养老院痴呆症患者的非正式照护者的体验、优先事项和看法：范围综述。
The experiences, priorities, and perceptions of informal caregivers of people with dementia in nursing homes: A scoping review.
机构信息
Department of Occupational Therapy, School of Health and Rehabilitation Sciences, 6614University of Pittsburgh, Pittsburgh, PA, USA.
Health Sciences Library System, 499478University of Pittsburgh, Pittsburgh, PA, USA.
出版信息
Dementia (London). 2021 Nov;20(8):2746-2765. doi: 10.1177/14713012211012606. Epub 2021 Apr 24.
BACKGROUND
Person-centered care has been shown to increase desired outcomes for people with dementia, yet informal caregivers' dissatisfaction with care is often reported. For those living in a nursing home, informal caregivers are uniquely situated to provide key insights into the individual's care. However, little is known of the informal caregivers' perspective, which hinders efforts to improve their satisfaction with person-centered nursing home care. Thus, we examined the comprehensive experiences, priorities, and perceptions of informal caregivers of nursing home residents with dementia.
METHODS
In collaboration with stakeholders, a scoping review of Medline (Ovid), EMBASE.com, CINAHL (EBSCO), the Cochrane Library (Wiley), and PsycINFO (Ovid) databases from January 2000 to July 2020 was conducted. Data were extracted reflecting the experiences, priorities, and preferences of caregivers of people with dementia residing in nursing homes.
RESULTS
We identified 114 articles that revealed nine themes: (1) communication, (2) transition to nursing home, (3) quality of care, (4) quality of life, (5) informal caregiver role, (6) knowledge of dementia, (7) end-of-life preferences, (8) medication use to manage neuropsychiatric behaviors, and (9) finances.
CONCLUSION
Informal caregivers described aspects of care that led to both positive and negative experiences with and perceptions of nursing home care. The shortcomings in communication were discussed most frequently, indicating a high priority area. While researchers define the identified themes individually, informal caregivers perceive them to be interwoven as they relate to person-centered care delivery. Although we did not assess the quality of included articles, by identifying themes relevant to caregivers' perspectives of nursing home care, our findings may help to inform efforts to optimize caregivers' satisfaction with nursing home care for residents with dementia.
背景
以人为中心的护理已被证明可以增加痴呆症患者的预期结果，但经常有报道称，非专业护理人员对护理不满意。对于那些住在养老院的人来说，非专业护理人员是提供个人护理关键见解的独特人选。然而，对于非专业护理人员的观点，我们知之甚少，这阻碍了提高他们对以人为主的养老院护理满意度的努力。因此，我们研究了痴呆症养老院居民非专业护理人员的综合体验、优先事项和看法。
方法
与利益相关者合作，对 2000 年 1 月至 2020 年 7 月期间的 Medline（Ovid）、EMBASE.com、CINAHL（EBSCO）、Cochrane 图书馆（Wiley）和 PsycINFO（Ovid）数据库进行了范围审查。提取反映居住在养老院的痴呆症患者的护理人员的体验、优先事项和偏好的数据。
结果
我们确定了 114 篇文章，揭示了九个主题：（1）沟通，（2）向养老院过渡，（3）护理质量，（4）生活质量，（5）非专业护理人员角色，（6）痴呆症知识，（7）临终关怀偏好，（8）用于管理神经精神行为的药物使用，以及（9）财务状况。
结论
非专业护理人员描述了护理的各个方面，这些方面导致了他们对养老院护理的积极和消极体验以及看法。讨论最多的是沟通方面的不足，这表明这是一个高度优先的领域。虽然研究人员单独定义了所确定的主题，但非专业护理人员认为这些主题相互交织，因为它们与人为主导的护理服务有关。虽然我们没有评估包括文章的质量，但通过确定与非专业护理人员对养老院护理看法相关的主题，我们的发现可能有助于为优化痴呆症患者对养老院护理的满意度提供信息。
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