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患者和照护者对心力衰竭对生活质量影响的看法:一项定性研究。

Patients' and carers' perspective of the impact of heart failure on quality of life: a qualitative study.

机构信息

Health Psychology Section, Institute of Psychiatry, Psychology & Neuroscience (Ioppn), King's College London, London, UK.

Cardiology Department, Guy's and St Thomas' NHS Foundation Trust London, London, UK.

出版信息

Psychol Health Med. 2022 Jul;27(6):1381-1396. doi: 10.1080/13548506.2021.1922719. Epub 2021 May 5.

Abstract

Heart failure (HF) is a syndrome associated with high mortality and morbidity. HF patients tend to be at a high risk of poor clinical and psychosocial outcomes. This study aimed to capture patients' and carers perspectives of HF, the impact on their health reported QoL, and the factors associated with their poor health outcomes. To explore HF patients' and carers' views on their QoL since diagnosis. This study used a cross-sectional, qualitative design with semi-structured interviews conducted with participating patients and carers. Thirteen adults (> 18 years) with HF and 21 carers were interviewed over the telephone, following a semi-structured interview schedule. Interviews were transcribed verbatim and analysed using inductive thematic analysis. Three main themes were identified, with an overarching theme . Themes included . Patients with HF are at high-risk of various issues which can negatively impact their QoL. Additionally, Carers play a vital role in the management of HF patients. Effective patient centred care and better communication between patients, carers and healthcare professionals is vital in HF management.

摘要

心力衰竭(HF)是一种与高死亡率和高发病率相关的综合征。HF 患者往往面临着临床和心理社会结局不良的高风险。本研究旨在了解患者和照护者对 HF 的看法、HF 对其报告的生活质量的影响,以及与不良健康结局相关的因素。探讨 HF 患者自诊断以来的生活质量观点。本研究采用横断面、定性设计,对参与的患者和照护者进行半结构式访谈。通过电话对 13 名(>18 岁)HF 成年患者和 21 名照护者进行访谈,采用半结构式访谈提纲。访谈逐字记录,并使用归纳主题分析进行分析。确定了三个主要主题,其中一个主题是 。主题包括 。HF 患者面临各种可能对其生活质量产生负面影响的高风险问题。此外,照护者在 HF 患者的管理中起着至关重要的作用。以患者为中心的有效护理以及患者、照护者和医疗保健专业人员之间更好的沟通,在 HF 管理中至关重要。

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