Eye Department, Birmingham Children's Hospital, Birmingham, UK.
Strabismus. 2021 Jun;29(2):90-94. doi: 10.1080/09273972.2021.1914680. Epub 2021 May 12.
To gauge parental satisfaction of an orthoptic-led specialist service for teaching soft contact lens (CL) handling in the management of children with pediatric aphakia. 20 families attending the contact lens clinic completed a satisfaction questionnaire to enquire about their experience of learning how to insert and remove their child's CL. Families were questioned on their experiences with preoperative counseling, practical teaching, additional support and the patient literature that was provided by the orthoptists in the CL clinic. Qualitative data and free comments were analyzed. 18/20 (90%) said they had received good practical insertion and removal teaching. 19/20 (95%) felt they received good emotional support. Only 6/20 (30%) families agreed with the statement that they found learning insertion and removal difficult. 15/20 (75%) families did not feel rushed, and 18/20 (90%) said they could learn at their own pace. All except one family (95%) achieved daily CL handling within a few months, with ongoing support from a multi-disciplinary team. One family surveyed was much earlier in their postoperative journey, but was on track to achieve this imminently. All families (100%) felt they were appropriately counselled preoperatively regarding the need for training and daily CL handling. 95% found the provided written information useful. 8/20 (40%) reported they found insertion harder than removal, 4/20(20%) reported they found removal harder. Teaching insertion and removal skills is an important aspect of managing paediatric aphakia and presents many challenges. Most parents eventually cope well and achieve daily CL handling within a few months, with support from a multi-disciplinary team. Families surveyed were all competent and were satisfied with their experience. The parental satisfaction survey gave our team confidence that our orthoptic-led service works well, orthoptists have the knowledge and skills to provide technical training to parents alongside vital emotional support, and contact lens handling is a rewarding extended role for orthoptists in a multi-disciplinary team.
评估由视轴矫正专家主导的专科服务，用于教授患有小儿无晶状体症的儿童软性隐形眼镜（CL）处理，以满足家长的满意度。20 个家庭参加隐形眼镜诊所，完成了一份满意度问卷，询问他们学习插入和取出孩子 CL 的经验。家庭被问及他们对术前咨询、实际教学、额外支持以及视轴矫正师在 CL 诊所提供的患者文献的体验。对定性数据和自由评论进行了分析。20 个家庭中的 18 个（90%）表示他们接受了良好的实际插入和取出教学。20 个家庭中的 19 个（95%）感到他们得到了良好的情感支持。只有 6/20 个家庭（30%）同意他们发现学习插入和取出困难的说法。15/20 个家庭（75%）不感到匆忙，18/20 个家庭（90%）表示他们可以按照自己的节奏学习。除一个家庭外（95%），所有家庭在几个月内都能每天处理 CL，同时得到多学科团队的持续支持。接受调查的一个家庭在术后旅程中更早，但即将实现这一目标。所有家庭（100%）都感到他们在术前就接受了适当的咨询，了解了培训和日常 CL 处理的必要性。95%的家庭认为提供的书面信息有用。20 个家庭中的 8 个（40%）报告说插入比取出更难，20 个家庭中的 4 个（20%）报告说取出比插入更难。教授插入和取出技能是管理小儿无晶状体症的重要方面，存在许多挑战。大多数父母最终都能很好地应对，在多学科团队的支持下，在几个月内就能每天处理 CL。接受调查的家庭都很有能力，对他们的体验感到满意。家长满意度调查让我们的团队有信心，我们的视轴矫正师主导的服务运作良好，视轴矫正师拥有知识和技能，能够为父母提供技术培训，同时提供至关重要的情感支持，处理隐形眼镜是视轴矫正师在多学科团队中的一项有益的扩展角色。
