Karolinska Institutet, Stockholm, Sweden.
Stockholm Healthcare Services, Region Stockholm, Stockholm, Sweden.
Qual Health Res. 2021 Aug;31(10):1904-1917. doi: 10.1177/10497323211012986. Epub 2021 May 13.
Conversations about values for the end-of-life (EoL) between residents, relatives, and staff may allow EoL preparation and enable value-concordant care, but remain rare in residential care home (RCH) practice. In this article, longitudinal qualitative analysis was used to explore changes in staff discussions about EoL conversations throughout workshop series based on reflection and knowledge exchange to promote EoL communication in RCHs. We identified three overall continuums of change: EoL conversations became perceived as more feasible and valuable; conceptualizations of quality EoL care shifted from being generalizable to acknowledging individual variation; and staff's role in facilitating EoL communication as a prerequisite for care decision-making was emphasized. Two mechanisms influenced changes: cognitively and emotionally approaching one's own mortality and shifting perspectives of EoL care. This study adds nuance and details about changes in staff reasoning, and the mechanisms that underlie them, which are important aspects to consider in future EoL competence-building initiatives.
关于生命终末期(EoL)的价值观的对话,在居民、亲属和工作人员之间进行,可能会促进 EoL 的准备并实现价值观一致的护理,但在养老院(RCH)实践中仍然很少见。在这篇文章中,我们使用纵向定性分析,探讨了基于反思和知识交流的系列研讨会如何改变工作人员对 RCH 中 EoL 沟通的讨论,以促进 EoL 沟通。我们确定了三个总体变化连续体:EoL 对话变得更加可行和有价值;对高质量 EoL 护理的概念化从可推广转变为承认个体差异;并强调工作人员在促进 EoL 沟通方面的作用,这是护理决策的前提。两种机制影响了变化:认知和情感上接近自己的死亡和转变对 EoL 护理的看法。本研究增加了工作人员推理变化的细微差别和细节,以及这些变化背后的机制,这是未来 EoL 能力建设计划中需要考虑的重要方面。