Department of Health Sciences, Aalborg University, Aalborg, Denmark.
Centre for Nutrition and Intestinal Failure, Aalborg University Hospital, Aalborg, Denmark.
J Hum Nutr Diet. 2022 Feb;35(1):49-57. doi: 10.1111/jhn.12916. Epub 2021 Jun 5.
Children with cerebral palsy (CP) are at risk of becoming malnourished. Malnutrition risk increases with increased gross motor function classification. The present study aimed to investigate and explore existing nutritional efforts and practice among staff in Danish hospitals and care homes working with children with CP.
Ten qualitative interviews were generated with multidisciplinary staff working in hospital wards, care homes and Neuro Pediatric Team (NPT). Analysis was inspired by Braun and Clarke's thematic analysis.
The analysis generated the following six themes: Weighing and anthropometric measurements; Existing nutritional evaluation and intervention in practice; Cross-sectoral communication and interdisciplinarity; Involvement of the children's parents; Knowledge and professional intuition; and Time and priority. Weighing is the most common nutritional evaluation, supplemented by weight/height curves in the NPT. No actual screening is performed. In care homes without healthcare staff, the nutritional focus primarily regards the meal and how the children are able to eat. In care homes with health staff, as well as hospital departments, the focus is primarily on weight. Written communication is a necessity for the nutritional collaboration around the child to work, but collaboration between IT-systems are lacking. Interdisciplinarity and parental involvement are key components for managing nutrition issues among children with CP. The specialist dietitian was much required, but difficult to reach.
Despite the great focus on nutrition and nutritional status among children with CP in all of the inquired contexts, existing efforts for assessment reveal primarily on weight and intuition. No actual screening is performed. Collaboration between sectors and professionals is challenged by lacking IT-systems and systematic procedures.
脑瘫儿童（CP）有营养不良的风险。随着粗大运动功能分类的增加，营养不良的风险增加。本研究旨在调查和探讨丹麦医院和护理院从事脑瘫儿童工作的多学科工作人员现有的营养工作和实践。
对在医院病房、护理院和神经儿科团队（NPT）工作的多学科工作人员进行了 10 次定性访谈。分析受到 Braun 和 Clarke 的主题分析的启发。
分析产生了以下六个主题：称重和人体测量；现有营养评估和实践中的干预；跨部门沟通和跨学科性；儿童家长的参与；知识和专业直觉；以及时间和优先级。称重是最常见的营养评估，在 NPT 中补充体重/身高曲线。没有实际的筛查。在没有医护人员的护理院，营养重点主要关注餐食和孩子的进食能力。在有医护人员的护理院以及医院科室，重点主要是体重。书面沟通是围绕孩子进行营养合作的必要条件，但 IT 系统之间的合作缺乏。跨学科性和家长参与是管理脑瘫儿童营养问题的关键组成部分。营养师非常需要，但很难联系到。
尽管所有调查背景都非常关注脑瘫儿童的营养和营养状况，但现有的评估工作主要侧重于体重和直觉。没有实际的筛查。由于缺乏 IT 系统和系统程序，部门和专业人员之间的合作受到挑战。
