Department of General Psychology, Central Tehran Branch, Islamic Azad University, Tehran, Iran.
Department of Psychology, Faculty of Humanities Abhar Branch, Islamic Azad University, Abhar, Iran.
Haemophilia. 2021 Jul;27(4):599-605. doi: 10.1111/hae.14155. Epub 2021 May 16.
Haemophilia has known as an inherited bleeding disorder accompanied by remarkable pain, emotional distress, and impaired quality of life (QoL) and emotional regulation. Psychological interventions, such as cognitive-behavioural therapy (CBT), have cost-effectiveness to promote emotional well-being, QoL and emotional regulation; however, they have been scarcely used in the treatment of haemophilia.
This research aimed at examining the effect of CBT on emotional regulation and QoL in children with haemophilia using quasi-experimental research with pretest and post-test design and a control group.
30 subjects were selected using convenient sampling and divided into two groups (n = 15). Both groups responded to the QoL questionnaire, the Persian version of the Pediatric Quality of Life Inventory (PedsQL) developed and the Cognitive Emotion Regulation Questionnaire (CERQ-k) in the pretest. The experimental group was then subjected to the CBT intervention through 9 sessions. The analysis of covariance was used for data analysis.
There was a significant increase in the QoL and emotion regulation in the experimental group than the control group.
The CBT training was effective to stop negative thinking and control their anger at school and also to adopt more appropriate strategies to deal efficaciously with concerns in social situations. Awareness about the thoughts, feelings and behaviours and being able to solve problems enables children to have better social relations and friendships with peers and also in other social situations. It also can increase the QoL and emotion regulation.
血友病是一种遗传性出血性疾病，伴有明显的疼痛、情绪困扰以及生活质量（QoL）和情绪调节受损。心理干预，如认知行为疗法（CBT），具有成本效益，可以促进情绪健康、QoL 和情绪调节；然而，它们在血友病的治疗中很少被使用。
本研究旨在使用准实验研究（包括前测和后测设计和对照组），检验 CBT 对血友病儿童情绪调节和 QoL 的影响。
通过方便抽样选择了 30 名受试者，并将其分为两组（n=15）。两组均在前测中回答了 QoL 问卷、经开发的波斯语版儿童生活质量量表（PedsQL）和认知情绪调节问卷（CERQ-k）。然后，实验组通过 9 次 CBT 干预。采用协方差分析进行数据分析。
实验组的 QoL 和情绪调节明显高于对照组。
CBT 训练可以有效阻止消极思维，控制在学校的愤怒情绪，并采用更合适的策略，在社交情境中有效地应对问题。提高对思想、情感和行为的认识，并能够解决问题，使儿童能够与同龄人以及其他社交情境中的更好地建立社交关系和友谊。它还可以提高 QoL 和情绪调节。
