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**文献疗法改善痴呆患者非专业照护者的照护评估**:一项初步随机对照试验。

Bibliotherapy for improving caregiving appraisal of informal caregivers of people with dementia: A pilot randomized controlled trial.

机构信息

School of Nursing and Health, Zhengzhou University, Zhengzhou, China.

WHO Collaborating Center for Community Health Services, School of Nursing, The Hong Kong Polytechnic University, Hung Hom, Kowloon, Hong Kong SAR, China.

出版信息

Res Nurs Health. 2021 Aug;44(4):692-703. doi: 10.1002/nur.22143. Epub 2021 May 18.

Abstract

Caregiving appraisal is a key driver to moderating caregiving outcomes. The caregiving appraisal of informal caregivers of people with dementia requires increased attention. This study aimed to explore the feasibility and acceptability of an evidence-based bibliotherapy protocol, and test the efficacy on improving caregiving appraisal. A two-arm pilot randomized controlled trial was adopted. Sixty informal caregivers were randomized to either the intervention group, receiving eight weekly professional-guided bibliotherapy sessions in addition to usual care; or the usual care group. The professional-guided bibliotherapy sessions were weekly sessions in which caregivers self-read the designated chapter and then received telephone coaching. Caregiving appraisal, coping, psychological well-being, positive aspects of caregiving, knowledge of dementia, and attitude toward dementia were assessed both at baseline and immediately after the intervention. Assessors were blinded to group allocation. Individual interviews among 10 participants from the intervention group were conducted to explorecaregivers' acceptance of the intervention. Descriptive statistics, χ test, Mann-Whitney U test, independent t test, generalized estimating equation, and content analysis were used for data analysis. This study pioneered the use of bibliotherapy among informal caregivers of people with dementia. The participant recruitment rate was 69.8%. The attrition rate of the intervention group was 20%. Bibliotherapy had a significant time-by-group interaction effect on caregiving appraisal (p < 0.001), coping (p = 0.003), positive aspects of caregiving (p = 0.001), knowledge of dementia (p = 0.017), and attitude toward dementia (p < 0.001). The effect on psychological well-being, however, was only significant on the personal growth subscale (p = 0.025). The acceptability was also confirmed. No adverse event was documented.

摘要

照料评估是调节照料结果的关键驱动因素。痴呆患者非专业照料者的照料评估需要得到更多关注。本研究旨在探索基于证据的图书疗法方案的可行性和可接受性,并检验其改善照料评估的效果。采用了双臂试点随机对照试验。将 60 名非专业照料者随机分为干预组和常规护理组。干预组除接受常规护理外,还接受每周 8 次专业指导的图书疗法,每次疗法中照料者自行阅读指定章节,然后接受电话辅导。在基线和干预结束后立即评估照料评估、应对方式、心理幸福感、积极的照料方面、痴呆知识和对痴呆的态度。评估者对分组情况不知情。对干预组的 10 名参与者进行了个体访谈,以探讨他们对干预措施的接受程度。采用描述性统计、χ 检验、Mann-Whitney U 检验、独立 t 检验、广义估计方程和内容分析进行数据分析。本研究开创了在痴呆患者非专业照料者中使用图书疗法的先河。参与者的招募率为 69.8%。干预组的失访率为 20%。图书疗法对照料评估(p<0.001)、应对方式(p=0.003)、积极的照料方面(p=0.001)、痴呆知识(p=0.017)和对痴呆的态度(p<0.001)有显著的时间-组间交互效应。然而,对心理幸福感的影响仅在个人成长分量表上显著(p=0.025)。可接受性也得到了证实。没有记录到不良事件。

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