Kashtan Clifford
Department of Pediatrics, Division of Pediatric Nephrology, University of Minnesota Medical School, Minneapolis, MN, 55454, USA.
J Multidiscip Healthc. 2021 May 21;14:1169-1180. doi: 10.2147/JMDH.S284784. eCollection 2021.
Alport syndrome is a multisystem disorder that universally affects the kidney and frequently involves the inner ear and the eye. Over the course of a lifetime, addressing the health care needs of a person with Alport syndrome and their family entails the services of primary providers, nephrologists, genetic counselors, audiologists, ophthalmologists, transplant physicians, kidney dieticians, and social workers as well as other healthcare professionals. This article attempts to provide context and guidance regarding the multidisciplinary care of Alport syndrome based on the natural history of the condition.
奥尔波特综合征是一种多系统疾病，普遍影响肾脏，常累及内耳和眼睛。在人的一生中，满足患有奥尔波特综合征的患者及其家人的医疗保健需求需要初级医疗服务提供者、肾病学家、遗传咨询师、听力学家、眼科医生、移植医生、肾脏营养师、社会工作者以及其他医疗保健专业人员的服务。本文试图根据该疾病的自然病程，提供有关奥尔波特综合征多学科护理的背景信息和指导。
