Fauk Nelsensius Klau, Ward Paul Russell, Hawke Karen, Mwanri Lillian
College of Medicine and Public Health, Flinders University, Adelaide, SA, Australia.
Institute of Resource Governance and Social Change, Kupang, Indonesia.
Front Med (Lausanne). 2021 May 12;8:625787. doi: 10.3389/fmed.2021.625787. eCollection 2021.
Stigma and discrimination are major challenges facing People Living with HIV/AIDS (PLWHA) globally due to their HIV status. As part of a larger qualitative study in Yogyakarta and Belu, Indonesia, using in-depth interviews with 92 PLWHA (52 women, 40 men) and 20 healthcare providers, this paper describes perspectives and personal experiences of the 20 healthcare providers, relating to HIV stigma and discrimination toward PLWHA in both study settings. The healthcare providers were recruited from healthcare facilities providing HIV-related healthcare services, using a snowball sampling technique. A qualitative framework analysis was used to guide data analysis. Health stigma and discrimination framework guided the conceptualisation and discussion of the findings. The findings presented the views and perspectives of healthcare providers that HIV stigma and discrimination toward PLWHA still occurred within families, communities and healthcare settings. These were reflected in negative labelling, separation of personal belongings, avoidance, denial of treatment and rejection of PLWHA by healthcare providers, family and community members. Some healthcare providers reported that they had personally stigmatised and discriminated against PLWHA. A lack of knowledge about HIV, fear of contracting HIV, personal values, religious thoughts and sociocultural values and norms, were reported as drivers or facilitators behind this HIV-related stigma and discrimination. The findings indicate the importance of continued HIV/AIDS education for families, community members and healthcare providers, to raise awareness and to ensure that healthy and professional support systems are in place for PLWHA. The findings indicate the need to enhance improvement within the healthcare or HIV care system to adequately address the needs of PLWHA, which may facilitate their early initiation of HIV treatment and better treatment adherence and retention to increase Cluster of Differentiation 4 (CD4) count and suppress viral load. Future studies are also needed to explore the role that government and non-government institutions can play in improving health service delivery for people newly diagnosed with HIV and those living with HIV/AIDS.
由于感染艾滋病毒的状况,污名化和歧视是全球艾滋病毒/艾滋病感染者(PLWHA)面临的主要挑战。作为在印度尼西亚日惹和贝利开展的一项规模更大的定性研究的一部分,通过对92名艾滋病毒/艾滋病感染者(52名女性,40名男性)和20名医疗服务提供者进行深入访谈,本文描述了这20名医疗服务提供者在两个研究地点对艾滋病毒感染者污名化和歧视方面的观点及个人经历。医疗服务提供者是通过滚雪球抽样技术从提供艾滋病毒相关医疗服务的医疗机构招募而来的。采用定性框架分析法指导数据分析。健康污名化和歧视框架指导了研究结果的概念化和讨论。研究结果呈现了医疗服务提供者的观点,即对艾滋病毒感染者的污名化和歧视仍在家庭、社区和医疗环境中发生。这些体现在负面标签、个人物品分离、回避、拒绝治疗以及医疗服务提供者、家庭成员和社区成员对艾滋病毒感染者的排斥上。一些医疗服务提供者报告称,他们自己也曾对艾滋病毒感染者进行过污名化和歧视。据报告,对艾滋病毒缺乏了解、担心感染艾滋病毒、个人价值观、宗教思想以及社会文化价值观和规范是这种与艾滋病毒相关的污名化和歧视背后的驱动因素或促成因素。研究结果表明,持续对家庭、社区成员和医疗服务提供者开展艾滋病毒/艾滋病教育很重要,以提高认识并确保为艾滋病毒感染者建立健全且专业的支持系统。研究结果表明,需要在医疗或艾滋病毒护理系统内加强改进,以充分满足艾滋病毒感染者的需求,这可能有助于他们尽早开始接受艾滋病毒治疗,并更好地坚持治疗和维持治疗,以提高分化抗原4(CD4)计数并抑制病毒载量。未来还需要开展研究,以探索政府和非政府机构在改善为新诊断出感染艾滋病毒者以及艾滋病毒/艾滋病感染者提供的医疗服务方面可以发挥的作用。