Department of Educational Foundations, 54547University of Botswana, Gaborone, Botswana.
Johns Hopkins Berman Institute of Bioethics, Baltimore, MD, USA.
J Empir Res Hum Res Ethics. 2021 Oct;16(4):424-434. doi: 10.1177/15562646211023332. Epub 2021 Jun 7.
Calls have been made for researchers prospectively and continuously to engage study communities. If done, this typically occurs through a specific research study or collaboration. Rarely are community mores examined in-depth to understand implications for research ethics policy processes. We describe a qualitative study designed to understand local community values, beliefs, and practices that relate to research ethics in Botswana and explore how communities would want their interests represented. Through focus group discussions across two different selected ethnic communities and in-depth interviews with paramount chiefs, we highlight a range of community values and expectations that represent concrete behavioral representations of respect and trustworthiness. Communities are willing to engage in the process of enhancing research and research ethics policies and procedures. We invite future research and training that seek to connect local conceptualizations of substantive and procedural aspects of research ethics.
有人呼吁研究人员前瞻性地、持续地参与研究社区。如果这样做，通常是通过特定的研究或合作来实现。很少有深入研究社区规范以了解其对研究伦理政策过程的影响。我们描述了一项定性研究，旨在了解博茨瓦纳与研究伦理相关的当地社区价值观、信仰和实践，并探讨社区希望如何代表自己的利益。通过在两个不同的选定族裔社区进行焦点小组讨论和与最高酋长进行深入访谈，我们强调了一系列社区价值观和期望，这些价值观和期望代表了尊重和值得信赖的具体行为表现。社区愿意参与加强研究和研究伦理政策和程序的过程。我们邀请未来的研究和培训，旨在将研究伦理的实质性和程序性方面的当地概念联系起来。
