Musesengwa Rosemary, Chimbari Moses J
College of Health Sciences, University of KwaZulu Natal, 1st Floor George Campbell Building, King George V Ave, Durban, 4041, South Africa.
BMC Med Ethics. 2017 Dec 13;18(1):76. doi: 10.1186/s12910-017-0236-3.
Community engagement (CE) models have provided much needed guidance for researchers to conceptualise and design engagement strategies for research projects. Most of the published strategies, however, still show very limited contribution of the community to the engagement process. One way of achieving this is to document experiences of community members in the CE processes during project implementation. The aim of our study was to explore the experiences of two research naïve communities, regarding a CE strategy collaboratively developed by researchers and study communities in a multicountry study.
The study was carried out in two research naïve communities; Gwanda, Zimbabwe and uMkhanyakude, South Africa. The multicentre study was a community based participatory ecohealth multicentre study. A qualitative case study approach was used to explore the CE strategy. Data was collected through Focus Group Discussions, Key Informant Interviews and Direct Observations. Data presented in this paper was collected at three stages of the community engagement process; soon after community entry, soon after sensitisation and during study implementation. Data was analysed through thematic analysis.
The communities generally had positive experiences of the CE process. They felt that the continuous solicitation of their advice and preferences enabled them to significantly contribute to shaping the engagement process. Communities also perceived the CE process as having been flexible, and that the researchers had presented an open forum for sharing responsibilities in all decision making processes of the engagement process.
This study has demonstrated that research naïve communities can significantly contribute to research processes if they are adequately engaged. The study also showed that if researchers put in maximum effort to demystify the research process, communities become empowered and participate as partners in research.
社区参与(CE)模式为研究人员构思和设计研究项目的参与策略提供了急需的指导。然而,大多数已发表的策略仍显示社区在参与过程中的贡献非常有限。实现这一点的一种方法是记录项目实施过程中社区成员在社区参与过程中的经历。我们研究的目的是探讨两个对研究缺乏经验的社区对于研究人员和研究社区在一项多国研究中共同制定的社区参与策略的体验。
该研究在两个对研究缺乏经验的社区中进行,分别是津巴布韦的万德和南非的姆赫尼亚库德。这项多中心研究是一项基于社区参与的生态健康多中心研究。采用定性案例研究方法来探讨社区参与策略。通过焦点小组讨论、关键 informant 访谈和直接观察收集数据。本文呈现的数据是在社区参与过程的三个阶段收集的:社区进入后不久、宣传后不久以及研究实施期间。通过主题分析对数据进行分析。
社区总体上对社区参与过程有积极的体验。他们认为持续征求他们的建议和偏好使他们能够对塑造参与过程做出重大贡献。社区还认为社区参与过程具有灵活性,并且研究人员在参与过程的所有决策过程中提供了一个分担责任的开放论坛。
这项研究表明,如果充分参与,对研究缺乏经验的社区可以对研究过程做出重大贡献。该研究还表明,如果研究人员尽最大努力消除研究过程的神秘感,社区就会获得权力并作为研究伙伴参与其中。