Bäck Maria, Leosdottir Margret, Hagström Emil, Norhammar Anna, Hag Emma, Jernberg Tomas, Wallentin Lars, Lindahl Bertil, Hambraeus Kristina
Department of Health, Medicine and Caring Sciences, Unit of Physiotherapy, Linköping University, 581 83 Linköping, Sweden.
Department of Molecular and Clinical Medicine, Institute of Medicine, Sahlgrenska Academy, University of Gothenburg, 405 30 Gothenburg, Sweden.
Eur Heart J Qual Care Clin Outcomes. 2021 Sep 16;7(5):431-437. doi: 10.1093/ehjqcco/qcab039.
The quality registry SWEDEHEART covers data across the patient pathway after an acute myocardial infarction (MI), from hospital care to secondary prevention. Although cardiac rehabilitation (CR) is strongly recommended after an MI, there is still heterogeneity regarding standards, uptake, and adherence rates. The aim of the SWEDEHEART-CR registry is to provide continuous information on secondary prevention and CR performance to support the audit and development of evidence-based practice. To facilitate quality improvement and research initiatives, a description of the characteristics and development of the SWEDEHEART-CR registry is needed.
The SWEDEHEART-CR registry starts with data obtained during hospital care and then collects data at out-patient visits 2 months and 1-year after discharge, and at start and end of an exercise-based CR programme. The registry data covers comorbidities, biochemistry, blood pressure, anthropometric variables, medication, psychosocial- and lifestyle variables, readmissions, patient-reported outcome measures, attendance in CR-related programmes, and physical fitness variables. Over 100 000 patients with MI have been included in the SWEDEHEART-CR registry since its start in 2005. From initially covering 35 centres (47%) and 2200 patients annually (27%), SWEDEHEART-CR has developed to a nation-wide registry with 75 centres (100%) and 8800 patients annually (80%) in 2020.
The SWEDEHEART-CR registry includes a high proportion of the national MI population entering a CR programme and is a powerful tool for quality audit, improvement, and research. The registry provides insights into the characteristics, treatment, and outcomes of evidence-based secondary preventive practice, ultimately leading to better cardiovascular health.
质量登记处SWEDEHEART涵盖急性心肌梗死（MI）后患者整个病程的数据，从住院治疗到二级预防。尽管强烈建议MI后进行心脏康复（CR），但在标准、接受率和依从率方面仍存在异质性。SWEDEHEART-CR登记处的目的是提供关于二级预防和CR表现的持续信息，以支持循证实践的审核和发展。为促进质量改进和研究倡议，需要对SWEDEHEART-CR登记处的特征和发展进行描述。
SWEDEHEART-CR登记处始于住院治疗期间获得的数据，然后在出院后2个月和1年的门诊就诊时，以及基于运动的CR计划开始和结束时收集数据。登记处数据涵盖合并症、生物化学、血压、人体测量变量、药物治疗、心理社会和生活方式变量、再入院情况、患者报告的结局指标、参加CR相关计划的情况以及体能变量。自2005年启动以来，超过10万名MI患者被纳入SWEDEHEART-CR登记处。SWEDEHEART-CR最初覆盖35个中心（47%），每年2200名患者（27%），到2020年已发展成为一个全国性登记处，覆盖75个中心（100%），每年8800名患者（80%）。
SWEDEHEART-CR登记处纳入了进入CR计划的全国MI人群的很大比例，是质量审核、改进和研究的有力工具。该登记处提供了关于循证二级预防实践的特征、治疗和结局的见解，最终带来更好的心血管健康。
