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教师在学校管理癫痫儿童的经验:一项定性研究。

Teachers' experiences of managing children with epilepsy in school: A qualitative study.

机构信息

School of Nursing, Shanghai Jiao Tong University, No.227 Chongqing South Road, Shanghai, China.

Nursing Department, Children's Hospital of Shanghai, No.355 Luding Road, Shanghai, China.

出版信息

Epilepsy Behav. 2021 Aug;121(Pt A):108039. doi: 10.1016/j.yebeh.2021.108039. Epub 2021 Jun 4.

Abstract

BACKGROUND

School is the second most important environment for children second to the family. An increasing number of children with epilepsy (CWE) are able to go back to school to continue to study after treatment. In school, CWE can be involved in studies and activities, which is conducive to their growth. However, CWE have to face more barriers than other children in school, such as cognitive impairment, poor attendance, school absenteeism, and learning disability. What is more, even if CWE have been taking antiepileptic medicines, they still have a risk of seizure. Therefore, it is important to ensure the safety of CWE in the school. Teachers play a significant part in managing CWE in school, so we aimed to deeply explore the experiences of school teachers in managing CWE during school.

METHOD

Purposive sampling was used to recruit teachers (n = 17) who cared for children with epilepsy in their class. Semi-structured interviews were used to access qualitative data. Framework analysis was used to analyze qualitative data.

RESULT

Five major themes emerged after analyzing: the recognition of epilepsy, the attitude to children with epilepsy, the barriers to communicate with parents about epilepsy, the reaction to a seizure, and the need for training.

CONCLUSION

The findings of this qualitative study reported teachers' knowledge of and attitude toward epilepsy, the barriers for them to communicate with parents, the reaction to seizure, and the need for training. Although teachers know little about epilepsy, they have a positive attitude toward CWE. There are many obstacles in terms of the communication between teachers and parents. Parents' cover-ups and teachers' lack of professional training will put teachers and CWE at risk. In view of the fact that teachers and parents are not professionals, it is necessary for hospitals to play a coordinating role between the two.

摘要

背景

学校是仅次于家庭的儿童第二重要环境。越来越多的癫痫患儿(CWE)在治疗后能够返回学校继续学业。在学校,CWE 可以参与学习和活动,这有利于他们的成长。然而,CWE 在学校比其他孩子面临更多的障碍,如认知障碍、出勤率低、缺课和学习障碍。更重要的是,即使 CWE 一直在服用抗癫痫药物,他们仍然有癫痫发作的风险。因此,确保 CWE 在学校的安全是很重要的。教师在学校管理 CWE 中起着重要的作用,因此,我们旨在深入探讨学校教师在学校管理 CWE 方面的经验。

方法

采用目的抽样法招募了 17 名在课堂上照顾癫痫儿童的教师(n=17)。采用半结构式访谈获取定性数据。采用框架分析对定性数据进行分析。

结果

分析后出现了五个主要主题:对癫痫的认识、对癫痫儿童的态度、与家长沟通癫痫的障碍、对癫痫发作的反应以及培训需求。

结论

这项定性研究的结果报告了教师对癫痫的认识和态度、与家长沟通的障碍、对癫痫发作的反应以及培训需求。尽管教师对癫痫了解甚少,但他们对 CWE 持积极态度。教师和家长之间的沟通存在许多障碍。家长的隐瞒和教师缺乏专业培训将使教师和 CWE 处于危险之中。鉴于教师和家长都不是专业人士,医院有必要在两者之间发挥协调作用。

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