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加拿大寻求生育服务人群的信息需求:一项混合方法分析。

Information needs of people seeking fertility services in Canada: a mixed methods analysis.

作者信息

Lemoine Marie-Eve, O'Connell Siobhan Bernadette Laura, Grunberg Paul Henry, Gagné Karolanne, Ells Carolyn, Zelkowitz Phyllis

机构信息

Lady Davis Institute for Medical Research, Montreal, Canada.

University of Montreal, School of Public Health, Montreal, Canada.

出版信息

Health Psychol Behav Med. 2021 Feb 11;9(1):104-127. doi: 10.1080/21642850.2021.1879650.

DOI:10.1080/21642850.2021.1879650
PMID:34104552
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8158234/
Abstract

BACKGROUND

Infertility is a challenging experience associated with high levels of psychological distress. Many people seeking fertility services use the internet to obtain information about their conditions and treatments.

OBJECTIVES

This mixed-methods study aimed to describe the information-seeking experience of people seeking fertility services with respect to the fulfillment of their individually defined information needs and explore relationships between the fulfillment of information needs and psychological outcomes.

METHODS

One hundred and four participants completed a survey with close-ended and open-ended questions about their experience using an informational web-based application (app) called 'Infotility' and about their mental well-being before and after using the app. The questionnaires administered were the Eleven participants completed in-depth qualitative interviews about their experience using the app. A thematic analysis was used to interpret qualitative results and quantitization was used to dichotomize participants into those with met information needs versus those with unmet information needs. Google Analytics was used to compare participants' reported experience with their actual use of the app.

RESULTS

The results of this study show that there is variability in the amount of information that people seeking fertility services wish to receive. Participants whose information needs were met reported improved psychological outcomes after using the app, while those with unmet needs showed no change in their psychological outcomes.

CONCLUSIONS

Our results suggest that fulfilling information needs was associated with improved psychological outcomes in people seeking fertility services. Our results also suggest that individual differences in information needs should be considered when developing health educational materials.

摘要

背景

不孕症是一种具有挑战性的经历,常伴随着高度的心理困扰。许多寻求生育服务的人利用互联网获取有关自身病情和治疗方法的信息。

目的

这项混合方法研究旨在描述寻求生育服务的人在满足其个人定义的信息需求方面的信息寻求经历,并探讨信息需求的满足与心理结果之间的关系。

方法

104名参与者完成了一项调查,其中包括关于他们使用一款名为“Infotility”的信息网络应用程序(应用)的经历以及使用该应用前后心理健康状况的封闭式和开放式问题。所发放的问卷包括……11名参与者完成了关于他们使用该应用经历的深入定性访谈。采用主题分析来解释定性结果,并进行量化以将参与者分为信息需求得到满足的人和信息需求未得到满足的人。使用谷歌分析来比较参与者报告的经历与他们实际使用该应用的情况。

结果

本研究结果表明,寻求生育服务的人希望获得的信息量存在差异。信息需求得到满足的参与者在使用该应用后报告心理结果有所改善,而需求未得到满足的参与者心理结果没有变化。

结论

我们的结果表明,满足信息需求与寻求生育服务的人的心理结果改善有关。我们的结果还表明,在开发健康教育材料时应考虑信息需求的个体差异。

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本文引用的文献

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Can mHealth interventions improve quality of life of cancer patients? A systematic review and meta-analysis.移动医疗干预能否改善癌症患者的生活质量?系统评价和荟萃分析。
Crit Rev Oncol Hematol. 2021 Jan;157:103123. doi: 10.1016/j.critrevonc.2020.103123. Epub 2020 Oct 20.
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Degrees of Medicalization: The Case of Infertility Health-Seeking.医学化程度:以寻求不孕不育治疗为例。
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First effective mHealth nutrition and lifestyle coaching program for subfertile couples undergoing in vitro fertilization treatment: a single-blinded multicenter randomized controlled trial.
确定基于移动设备的男性不育自我护理计划的内容和需求评估。
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JMIR Mhealth Uhealth. 2018 Jan 17;6(1):e23. doi: 10.2196/mhealth.8873.
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The Effects of Race and Racial Concordance on Patient-Physician Communication: A Systematic Review of the Literature.种族和种族一致性对医患沟通的影响:文献系统评价。
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JMIR Mhealth Uhealth. 2016 Jun 10;4(2):e72. doi: 10.2196/mhealth.5849.
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