Suppr超能文献

“生物样本来了”:针对儿童的生物库宣传活动分析。

"Here comes Bio-me": An analysis of a biobank campaign targeted at children.

机构信息

University of Helsinki, Finland.

出版信息

Public Underst Sci. 2021 Oct;30(7):913-926. doi: 10.1177/09636625211022648. Epub 2021 Jun 19.

Abstract

Finnish biobanks have started to recruit children. The national supervising authority has emphasized the centrality of providing children with age-appropriate information. We analyzed one such campaign. We argue that by simplifying the complex socio-technical arrangements of biobanking with the introduction of a new metaphor-like concept, "Bio-me," the campaign presents a misleading and reductionist picture of data-driven biomedicine and biobank participation. First, the Bio-me character seems to bear similarities to the seventeenth-century explanations of embryological development. Second, the focus in the campaign is on biological material while crucial connections to different sorts of data are ignored. Third, we point to the absence of verbal references to genes and DNA, although the prevailing visualization comprises the double helix. We argue that the campaign has potential to contribute to public misunderstanding of science by introducing a new term that has little connection to actual biology or scientific practices it tries to promote.

摘要

芬兰生物银行已开始招募儿童。国家监督机构强调为儿童提供适龄信息的重要性。我们分析了这样一个活动。我们认为,该活动通过引入一个新的隐喻概念“Bio-me”来简化生物银行复杂的社会技术安排,从而对数据驱动的生物医学和生物库参与产生了误导和简化的图景。首先,Bio-me 这个角色似乎与 17 世纪胚胎发育的解释有相似之处。其次,活动的重点是生物材料,而忽略了与不同类型数据的关键联系。第三,我们指出虽然流行的可视化包括双螺旋结构,但没有提到基因和 DNA。我们认为,该活动有可能通过引入一个与实际生物学或试图推广的科学实践几乎没有联系的新术语,导致公众对科学产生误解。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/89f9/8488646/79b7fc26f62f/10.1177_09636625211022648-fig1.jpg

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验