照顾脊柱裂患儿。

Caring for the Child with Spina Bifida.

作者信息

Rocque Brandon G, Hopson Betsy D, Blount Jeffrey P

机构信息

Division of Pediatric Neurosurgery, Department of Neurosurgery, Children's of Alabama, University of Alabama at Birmingham, 1600 7th Avenue South, Lowder 400, Birmingham, AL 35233, USA.

Children's of Alabama, 1600 7th Avenue South, Lowder 400, Birmingham, AL 35233, USA.

出版信息

Pediatr Clin North Am. 2021 Aug;68(4):915-927. doi: 10.1016/j.pcl.2021.04.013.

DOI:10.1016/j.pcl.2021.04.013

PMID:34247717

Abstract

Care for a child with spina bifida can be complex, requiring multiple specialists. Neurosurgical care centers around the initial closure or repair of the spinal defect, followed by management of hydrocephalus, symptoms of the Chiari 2 malformation, and tethered cord. This article reviews definitions and types of spina bifida, considerations surrounding the initial treatment, including fetal surgery, and the ongoing neurosurgical management of common comorbid conditions. The role of interdisciplinary care is stressed, as well as the importance of coordinated transition to adult care at an appropriate age and developmental stage.

摘要

对脊柱裂患儿的护理可能很复杂，需要多个专科医生参与。神经外科护理围绕脊柱缺损的初始闭合或修复展开，随后是脑积水、Chiari 2 畸形症状和脊髓拴系的管理。本文回顾了脊柱裂的定义和类型、初始治疗的相关考量（包括胎儿手术）以及常见合并症的持续神经外科管理。强调了跨学科护理的作用，以及在适当年龄和发育阶段协调向成人护理过渡的重要性。