Division of Pediatric Surgery, Ann and Robert H. Lurie Children's Hospital, Chicago, IL, USA.
Division of Palliative Care, Ann and Robert H. Lurie Children's Hospital, Chicago, IL, USA.
Ann Palliat Med. 2022 Feb;11(2):918-926. doi: 10.21037/apm-20-2370. Epub 2021 Jul 6.
Care for pediatric patients with serious or potentially life-limiting illness involves the interplay of multiple medical and surgical teams within the hospital. Pediatric surgeons are capable of performing procedures that can improve the quality of life for children facing serious illness, but which also carry the potential for significant risk and burden. Patients and families are often faced with decisions about invasive surgical procedures and interventions, stressing the need for seamless collaboration between palliative care and surgical providers. Equally important is the need for clear and open-ended communication with patients and families by all medical teams to determine if potential surgical procedures and interventions align with their goals and to ensure that the perceived benefits of interventions outweigh any risks. Over the last two decades, pediatric palliative care has grown into a thriving medical subspecialty Despite the importance of collaborative care, there is lack of literature on the interaction of pediatric surgery and palliative care and the role of pediatric surgeons in providing primary palliative care. This review defines surgical pediatric palliative care, and provides an in-depth discussion of the unique complexities involved in caring for children with serious and potentially life-limiting illness, while highlighting specific challenges through detailed case presentations.
儿科重症或潜在危及生命疾病患儿的治疗需要医院内多个医疗和外科团队的共同协作。小儿外科医生能够进行一些手术,这些手术可以提高面临严重疾病患儿的生活质量,但也存在重大风险和负担。患儿及其家庭常常需要在有创性外科手术和干预措施方面做出决策,这强调了姑息治疗和外科医生之间无缝协作的必要性。同样重要的是,所有医疗团队都需要与患儿及其家庭进行清晰和无限制的沟通,以确定潜在的外科手术和干预措施是否符合他们的目标,并确保干预措施的预期益处超过任何风险。在过去的二十年中,儿科姑息治疗已发展成为一个蓬勃发展的医学亚专科。尽管协作式护理非常重要,但关于小儿外科和姑息治疗的相互作用以及小儿外科医生在提供主要姑息治疗方面的作用的文献却很少。本综述定义了外科儿科姑息治疗,并深入讨论了照顾患有严重和潜在危及生命疾病的儿童所涉及的独特复杂性,同时通过详细的病例介绍突出了特定的挑战。