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儿童姑息治疗护理十大要点

Top Ten Tips Palliative Care Clinicians Should Know About Caring for Children.

机构信息

1 Duke Palliative Care, Departments of Medicine and Pediatrics, Duke University, Durham, North Carolina.

2 Pediatric Palliative Care Program, Department of Pediatrics and Communicable Diseases, C.S. Mott Children's Hospital, Ann Arbor, Michigan.

出版信息

J Palliat Med. 2018 Dec;21(12):1783-1789. doi: 10.1089/jpm.2018.0482. Epub 2018 Oct 5.

Abstract

Given the limited number of pediatric-specific palliative care programs, palliative care providers of all disciplines may be called on to care for infants, children, and adolescents with serious illness. This article provides a review of the unique components of pediatric palliative care, including key roles within an interdisciplinary team, pediatric developmental considerations, use of medical technology and complexities of symptom management in children with serious illness, hospice utilization, as well as pointers for discussions with families regarding a patient's quality of life and goals of care.

摘要

鉴于儿科姑息治疗项目数量有限,所有学科的姑息治疗提供者都可能需要照顾患有严重疾病的婴儿、儿童和青少年。本文回顾了儿科姑息治疗的独特组成部分,包括跨学科团队中的关键角色、儿科发育考虑因素、在患有严重疾病的儿童中使用医疗技术和症状管理的复杂性、临终关怀的利用,以及与家属讨论患者生活质量和治疗目标的要点。

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