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消除妨碍使用预先指示缩短深度痴呆患者浸泡时间的医学法律误解。

Dispelling Medico-Legal Misconceptions Impeding Use of Advance Instructions to Shorten Immersion in Deep Dementia.

出版信息

J Leg Med. 2021 Jan-Jun;41(1-2):29-46. doi: 10.1080/01947648.2021.1919252.

DOI:10.1080/01947648.2021.1919252
PMID:34296971
Abstract

Progressive dementia afflicts millions of people, ultimately entailing precipitous mental decline and years of complete dependence on others. Many people deem the prospect of serious cognitive dysfunction, helplessness, and dependence to be intolerably degrading (as well as overly burdensome on others). To avoid being mired in prolonged dementia, they prefer to hasten death by advance instructions rejecting life-sustaining medical intervention at a point of decline they define as unacceptable.Some health care providers resist implementation of such advance instructions, especially as applied to patients with dementia who are not ostensibly suffering in their demented states and no longer recall their prior instructions and the dignity concerns that underlay them. The clash between advance wishes to hasten death and some health care providers' preference to maintain the well-being of nonsuffering patients will be surfacing, in coming years, in institutional ethics committees, professional disciplinary forums, and the courts. This article defends the legal and moral status of advance instructions seeking to shorten the unwanted limbo of deep dementia.

摘要

进行性痴呆症影响着数以百万计的人,最终导致严重的智力下降和多年完全依赖他人。许多人认为严重的认知功能障碍、无助和依赖是无法忍受的屈辱(也给他人带来了过重的负担)。为了避免长期痴呆的困扰,他们宁愿通过预先指示来加速死亡,即在他们认为无法接受的衰退点拒绝维持生命的医疗干预。一些医疗保健提供者反对实施这些预先指示,尤其是对于那些在痴呆状态下没有明显痛苦、不再记得先前指示以及这些指示所依据的尊严问题的痴呆症患者。提前希望加速死亡的意愿与一些医疗保健提供者维持非痛苦患者健康的意愿之间的冲突,将在未来几年内在机构伦理委员会、专业纪律论坛和法院中显现出来。本文为寻求缩短深度痴呆症不必要的困境的预先指示的法律和道德地位辩护。

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Dispelling Medico-Legal Misconceptions Impeding Use of Advance Instructions to Shorten Immersion in Deep Dementia.消除妨碍使用预先指示缩短深度痴呆患者浸泡时间的医学法律误解。
J Leg Med. 2021 Jan-Jun;41(1-2):29-46. doi: 10.1080/01947648.2021.1919252.
2
On Avoiding Deep Dementia.论避免深度痴呆
Hastings Cent Rep. 2018 Jul;48(4):15-24. doi: 10.1002/hast.865.
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Advance directives as a tool to respect patients' values and preferences: discussion on the case of Alzheimer's disease.预先指示作为尊重患者价值观和偏好的工具:关于阿尔茨海默病案例的讨论
BMC Med Ethics. 2018 Feb 20;19(1):9. doi: 10.1186/s12910-018-0249-6.
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Flaws in advance directives that request withdrawing assisted feeding in late-stage dementia may cause premature or prolonged dying.在晚期痴呆症中要求撤回辅助喂养的预先指示中的缺陷可能导致过早或延长死亡。
BMC Med Ethics. 2022 Oct 6;23(1):100. doi: 10.1186/s12910-022-00831-7.
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When Voluntary Stopping of Eating and Drinking in Advanced Dementia Is No Longer Voluntary.当晚期痴呆患者的自愿停止进食和饮水不再是自愿行为时。
Hastings Cent Rep. 2018 Jul;48(4):24-25. doi: 10.1002/hast.866.
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Euthanasia in persons with advanced dementia: a dignity-enhancing care approach.晚期痴呆患者的安乐死:一种增强尊严的关怀方法。
J Med Ethics. 2022 Nov;48(11):907-914. doi: 10.1136/medethics-2021-107308. Epub 2021 May 20.
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Advance Directives for Refusing Life-Sustaining Treatment in Dementia.拒绝痴呆症生命维持治疗的预先指示。
Hastings Cent Rep. 2018 Sep;48 Suppl 3:S75-S79. doi: 10.1002/hast.919.
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Cognitive Transformation, Dementia, and the Moral Weight of Advance Directives.认知转变、痴呆症与预先指示的道德分量。
Am J Bioeth. 2020 Aug;20(8):54-64. doi: 10.1080/15265161.2020.1781955.
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Eudaimonia and well-being: questioning the moral authority of advance directives in dementia.幸福与福祉:质疑痴呆症预先指示的道德权威。
Theor Med Bioeth. 2020 Feb;41(1):23-37. doi: 10.1007/s11017-020-09517-w.
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Advance Directives and Alzheimer's Disease.预先指示和老年痴呆症。
J Law Med Ethics. 2018 Sep;46(3):744-748. doi: 10.1177/1073110518804235.

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A Review of Terman's "Timely dying in dementia: Use patients' judgments and broaden the concept of suffering".对特尔曼《痴呆症患者适时死亡:运用患者的判断并拓展痛苦的概念》的述评
Alzheimers Dement (Amst). 2024 Mar 15;16(1):e12535. doi: 10.1002/dad2.12535. eCollection 2024 Jan-Mar.